Hello,I am Kim and I have NF1.I have been having back trouble due to spine tumors.Doctors here don't know about Nf so they wont do anything.Anyone else suffer...
Hello,this is Kim.I am from Lyons Kansas.There is only 1 doctor in Kansas according to the net that knows much about Nf and he is 5 hours away from where I...
Hello,I have 3 kids and I have NF1.All 3 girls and they all have NF spots.My youngest is 11 and she is the only one that a doctor has said has NF.The other 2...
Hi. i am new to this group and i was wondering if anyone had any information on regards to medical/surgicial assistance for neurofibromatosis? I was previously...
My husband died 5 years ago tomorrow from a NF related cancer.It was 4 years from diognosis to losing his battel. It is very hard, the first year is the worst....
would anyone like to chat with me. Im 25 yrs old with nf1. I have multiple tumors in my neck and under my scalp. I have a couple in my back and one on my...
...si dobra? You are my architecture. Voli te tvoj sin. I jebat će te danonoćno cijeli život. Idemo all back and die. Your son Kare Palander,Lex Barker...
yeah id like to chat to u Lexi <northcalilexi@...> wrote: would anyone like to chat with me. Im 25 yrs old with nf1. I have multiple tumors in my neck...
hi how r u my name is juan i have nf1i like to chat to u can chat w/me at a sit for people w/nf at yahoogroups.com then go to other then tyep neyrofibromatosis...
Hi its been a few yrs things where going well with my NF1 at least we thought!.they thought I was having issues with my fibromyalgia and I was dealing with...
Hi Angel, My name is Jenny.....sorry to hear about your fibroma on your spine...but like you said at least you have PROOF that you are in pain....My doctors do...
Hi all hoping to find a room to chat in My neurofibromatosis has become a probem with pain and a cycst on my spine.besides having NF1 Im dealing with...
hi my name is cathy cat23. go to www.nf.org the best place to go and talk i am in tere all the time its a great place we are all like family in the room. can't...
hi so am i how old are u bhaybierhed <bhaybierhed@...> wrote: Hi... I'd like to have friends on this group... I'll be glad to have a response with you...
am 26 years young and u?r u a women or a mananyway nice to meet u JUAN RODRIGUEZ <jrodnfone@...> wrote:cool i like to be friends with u charlotte fielden...
Just to let everyone know, next week on BBC1 there is a documentary on BBC1 about Neurofibromatosis. Its on BBC1 Tuesday 15th February at 9pm. Thanks Shane...
Hi Angel, I have cysts on the spine too, and I take Tramadol for the pain. It helps, but i'm still not totally pain free. But it makes a big difference, I...
Jenny, OMG, I can't believe that the doctor told you that! WHere on earth did he get his degree? Online??!! Wow - anyone who knows anything about NF would...
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