hi im new here. my name is trish. i have nf. i am 22 years old. i know only one other person that has nf and she is 9 years old. i met her at a school for kids...
Well, talked to doctor today, and he doesn't want to do the surgury unless we absolutely have to. Actually, there are tumors on each level, but there is one...
HI, i've been away for a while... stopped coming when we kept getting so many spams, but there just arent' any other groups out there like this one. :) Have...
hi everyone wow i totally forgot about brians site its been so long i stopped going into room when we were getting alot of trouble makers..sry. But we...
Greetings, My Neighbor's Granddaughter Bethany is 3 and has Neurofibromatosis. She has recently had a few strokes, become blind, and had half her brain removed...
Im going through what i would call major stress at the moment and have visited my neurologists in the meantime. He told me that the two are not normally...
Hi Nancy, I work as a web designer and bookkeeper... I'm married, My husband makes
Indy Whips and also has an Entertainment Company.... I have two children.....
REALITIANITY is merely a belief in REALITY as defined by any individuals senses of taste, touch, smell, hearing, and/or vision... so if you believe in your own...
Hello all been menbre for a while first time to post,i was wondering if anyone out there has trouble meeting someone because of NF.Im 41 single and cant seem...
We are looking for info on Ribbon Ribs. Today our granddaughter had a bone xray and doc was concerned about her ribs. This is the first we have heard about...
yes -- would be happy to hear from her. Take care of yourself too, though. There are 2 messages in this issue. Topics in this digest: 1. Re: Digest Number 345...
I'm sorry to be so blunt, but your mother's outlook is very damaging and much of your sister's low self-esteeem can be blamed on your mother. You really...
I have a younger sister that has NF, actually three younger sisters. Our mother also has NF. I never did develope NF and neither has my daughter. Our mother...
hey hey, just thought id tell you guys about this free debt consolidation site that reduced my monthly payments by damn near half, no more worries about bills!...
Hi there Over the last few weeks i have been having very bad memory loss, both short and long term !! I am due to see my neurologist next week about it. I was...
I live in Japan but I've never heard anything about these treatments -- though I am skeptical. My wife goes in for one of her NF1 doctors appointments at...
Hey you all - I used to post every now and then on this group but I stopped due to being really busy. Anyway - I have NF1 and I was wondering if anyone knows...
Contradictions in the Qur'an The Qur'an states that it is a perfect book preserved on tablets in heaven (Surah 85:21-22). If the Qur'an is a perfect book from...
No My tumors started at the age of 18 and my daughter was 23 when we discovered the first tumor my son is 22 and we have not detected any tumors my father only...
TOP TEN MISCONCEPTIONS ABOUT ISLAM by : Huma Ahmad MISCONCEPTION #1: Muslims are violent, terrorists and/or extremists. This is the biggest misconception in...
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