neurofibromatosis2 : Messages : 4738-4784 of 6809

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#4784 From: brian_robert_williamson
Date: Fri Sep 3, 2004 9:30 pm
Subject: hello everyone brian_robert...
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Hope everyone is well and hope everyone is having a good time.  I am
in the process of deleting messages that do not have anything to do
with nf and in some cases banning members who are abusing the club.

If anyone is getting annoyed by a member or a message email me
williamson50@...  and l will sort it out as quickly as
possible.

Regards

Brian

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#4775 From: sharon shepherd <bigez130@...>
Date: Mon Jul 19, 2004 2:23 am
Subject: Re: [Neurofibromatosis] living in the UK bigez130
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I don't live in the UK but I will be more than happy to chat with you I live in New Orleans,Louisiana and I have NF1 I get very sad but if you need a friend I am here Bye Sharon herrdoughnutbabeuk@...> wrote:

Is ther anyone who lives in the uk that would like to chat to me sometime, I get very lonely.

Hello Gina,How are you today sorry I missed you call .I was out doing errands. Was hopeing you would hace called me Friday night I guess you were busy.Just wanted to drop you short note give me a call when you have some time love you sweet heart. Love Mom

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#4774 From: "doughnutbabeuk" <doughnutbabeuk@...>
Date: Sun Jul 18, 2004 4:04 pm
Subject: living in the UK doughnutbabeuk
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Is ther anyone who lives in the uk that would like to chat to me
sometime, I get very lonely.

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#4770 From: "Debi Duke" <debi149@...>
Date: Fri Jul 16, 2004 8:14 pm
Subject: Hello Everyone debi149
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Send Email

Just a note to say hi to everyone and to wish everyone a wonderful
weekend.....

I've been working on my NF E-Group and would like to invite everyone
to also visit me there. Everything has to be approved by me before
anyone can post or join to stop all the spam....

God Bless everyone and enjoy the weekend

Debi

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#4768 From: "debi" <debi149@...>
Date: Tue Jul 13, 2004 11:56 am
Subject: Re: [Neurofibromatosis] hi debi149
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Hi Nancy and Sharon & Karla,

Just a note to say hi and to wish each of you a wonderful day....

Debi

-------Original Message-------

From: neurofibromatosis2@yahoogroups.com

Date: 07/12/04 22:31:54

To: neurofibromatosis2@yahoogroups.com

Subject: Re: [Neurofibromatosis] hi

Hello Nancy,My name is Sharon I have nf 1 and I have two children hope to become friends.I need to chat with someone with the same feelings I am going thru maybe we can be support for each other please email me anytime I live in New Orleans ,La. hope to hear from you soon bye

karla bybee <funnyface3304@...> wrote:

Hi Nancy my name is Karla bybee and I have NF. I live in Grand Prairie, TX it is about 30 west of Dallas. I have two children both have NF my son had gone blind from it an also he has a brain tumor that right now not doing nothing but lying there. My daughter also has a tumor on purity gland. she just got married last September. I am getting more tumor my face and arms wish I get control of them. by the way i am 55 years old. my husband George support me. please email my son at slim2bee@... please this on to other nf people

debi <debi149@...> wrote:

Hello Nancy,

It's very nice to chat with you... I also have NF and am 45 years old... I live in Texas, may I ask what part of the world you are in???

I hope to hear from you soon

Debi

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#4767 From: sharon shepherd <bigez130@...>
Date: Tue Jul 13, 2004 3:30 am
Subject: Re: [Neurofibromatosis] hi bigez130
Offline
Send Email

Hi Nancy my name is Karla bybee and I have NF. I live in Grand Prairie, TX it is about 30 west of Dallas. I have two children both have NF my son had gone blind from it an also he has a brain tumor that right now not doing nothing but lying there. My daughter also has a tumor on purity gland. she just got married last September. I am getting more tumor my face and arms wish I get control of them. by the way i am 55 years old. my husband George support me. please email my son at slim2bee@... please this on to other nf people

debi <debi149@...> wrote:

Hello Nancy,

It's very nice to chat with you... I also have NF and am 45 years old... I live in Texas, may I ask what part of the world you are in???

I hope to hear from you soon

Debi

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#4766 From: karla bybee <funnyface3304@...>
Date: Tue Jul 13, 2004 3:11 am
Subject: Re: [Neurofibromatosis] hi funnyface3304
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Send Email

Hello Nancy,

It's very nice to chat with you... I also have NF and am 45 years old... I live in Texas, may I ask what part of the world you are in???

I hope to hear from you soon

Debi

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#4765 From: karla bybee <funnyface3304@...>
Date: Tue Jul 13, 2004 3:09 am
Subject: Re: [Neurofibromatosis] hi funnyface3304
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Hello Nancy,

It's very nice to chat with you... I also have NF and am 45 years old... I live in Texas, may I ask what part of the world you are in???

I hope to hear from you soon

Debi

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#4764 From: karla bybee <funnyface3304@...>
Date: Tue Jul 13, 2004 3:08 am
Subject: Re: [Neurofibromatosis] hi funnyface3304
Offline
Send Email

Hello Nancy,

It's very nice to chat with you... I also have NF and am 45 years old... I live in Texas, may I ask what part of the world you are in???

I hope to hear from you soon

Debi

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#4763 From: maria fernanda navarro <mafernavarro@...>
Date: Mon Jul 12, 2004 5:14 pm
Subject: Re: [Neurofibromatosis] Re: stress ? NF? mafernavarro
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hi!
when i have some strees my fibromas is littor more
big.
olso in my mestrucion.
i teke PROZAC.
maria



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#4762 From: "peppermorris23" <nannygoat30@...>
Date: Sun Jul 11, 2004 3:26 pm
Subject: [Neurofibromatosis] Re: hi peppermorris23
Offline
Send Email

--- In neurofibromatosis2@yahoogroups.com, "debi" <debi149@p...>
wrote:
> Hi Nancy,
>
> I work as a web designer and bookkeeper... I'm married, My husband
makes
> Indy Whips and also has an Entertainment Company....
> I have two children.. My daughter is 28 and my son is 24... I
don't get to
> watch any TV during the day... I use to watch Young and the
Restless.... But
> haven't watch that one in years.... I love to play on my computer
when I
> have time (which isn't a lot)... I also have two grandchildren
both boy's
> they are 5 and 6..... I'm looking forward in getting to know you
and talking
> with you more...
>
> Debi
>
> -------Original Message-------
>
> From: neurofibromatosis2@yahoogroups.com
> Date: 07/03/04 14:36:02
> To: neurofibromatosis2@yahoogroups.com
> Subject: [Neurofibromatosis] Re: hi
>
> --- In neurofibromatosis2@yahoogroups.com, "debi" <debi149@p...>
> wrote:
> > Hello Nancy,
> >
> > It's very nice to chat with you... I also have NF and am 45
years
> old... I
> > live in Texas, may I ask what part of the world you are in???
> >
> > I hope to hear from you soon
> >
> > Debi
> hi debi I live in maine . I work full time at a daycare . where do
> you work?
> what do you like to do for fun . My favorite thing is being on the
> computer.  U also like to read watch tv  my favorite soap  is days
> of our lives . do you watch that soap? I  have to my niece husband
> and my god son are here   do you want to chat on msn?   sometime .
> catch youlater nancy
>
>
> Yahoo! Groups Sponsor  deb do you msn messenger ?Maybe  we chat
omne that? P
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>
>
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> http://groups.yahoo.com/group/neurofibromatosis2/
>
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> neurofibromatosis2-unsubscribe@yahoogroups.com
>
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Service.

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#4761 From: "peppermorris23" <nannygoat30@...>
Date: Sun Jul 11, 2004 3:23 pm
Subject: Re: stress ? NF? peppermorris23
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--- In neurofibromatosis2@yahoogroups.com, sugarrita1
<no_reply@y...> wrote:
> I do feel that stress causes the nf tumors to stick out more or
> become more visible.  The ones that are not as noticeable seem to
pop
> out.  I know others with nf who feel the same.  I have experienced
> it....anyone else?  I have the same prolbem , when I am stress the
ones on myface  come out so bad, never use bothor me but It does, I
get very upset more stress my bumps,
> > >
> >
> > _________________________________________________________________
> > Get a FREE connection, FREE modem and one month's FREE line
rental,
> plus a
> > US or European flight when you sign up for BT Broadband!
> > http://www.msn.co.uk/specials/btbroadband

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#4759 From: "ben" <clone9@...>
Date: Sat Jul 10, 2004 3:42 pm
Subject: REALITIANITY clone9
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REALITIANITY is merely a belief in REALITY as defined by any
individuals senses of taste, touch, smell, hearing, and/or vision...
so if you believe in your own sense you are automatically a member
of the world's largest religion so welcome to REALITY
WWW.FORUMEARTH.COM
ps reality is we need more smart people on our new site ;)

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#4757 From: "debi" <debi149@...>
Date: Sun Jul 4, 2004 3:19 am
Subject: Re: [Neurofibromatosis] Re: hi debi149
Offline
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Hi Nancy,

I work as a web designer and bookkeeper... I'm married, My husband makes Indy Whips and also has an Entertainment Company....

I have two children.. My daughter is 28 and my son is 24... I don't get to watch any TV during the day... I use to watch Young and the Restless.... But haven't watch that one in years.... I love to play on my computer when I have time (which isn't a lot)... I also have two grandchildren both boy's they are 5 and 6..... I'm looking forward in getting to know you and talking with you more...

Debi

-------Original Message-------

From: neurofibromatosis2@yahoogroups.com

Date: 07/03/04 14:36:02

To: neurofibromatosis2@yahoogroups.com

Subject: [Neurofibromatosis] Re: hi

--- In neurofibromatosis2@yahoogroups.com, "debi" <debi149@p...> wrote: > Hello Nancy, > > It's very nice to chat with you... I also have NF and am 45 years old... I > live in Texas, may I ask what part of the world you are in??? > > I hope to hear from you soon > > Debi hi debi I live in maine . I work full time at a daycare . where do you work? what do you like to do for fun . My favorite thing is being on the computer. U also like to read watch tv my favorite soap is days of our lives . do you watch that soap? I have to my niece husband and my god son are here do you want to chat on msn? sometime . catch youlater nancy

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#4756 From: "peppermorris23" <nannygoat30@...>
Date: Sat Jul 3, 2004 7:35 pm
Subject: Re: hi peppermorris23
Offline
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--- In neurofibromatosis2@yahoogroups.com, "debi" <debi149@p...>
wrote:
> Hello Nancy,
>
> It's very nice to chat with you... I also have NF and am 45 years
old... I
> live in Texas, may I ask what part of the world you are in???
>
> I hope to hear from you soon
>
> Debi
  hi debi I live in maine . I work full time at a daycare . where do
you work?
  what do you like to do for fun . My favorite thing is being on the
computer.  U also like to read watch tv  my favorite soap  is days
of our lives . do you watch that soap? I  have to my niece husband
and my god son are here   do you want to chat on msn?   sometime .
catch youlater nancy

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#4755 From: "debi" <debi149@...>
Date: Sat Jul 3, 2004 2:11 am
Subject: Re: [Neurofibromatosis] hi debi149
Offline
Send Email

Hello Nancy,

It's very nice to chat with you... I also have NF and am 45 years old... I live in Texas, may I ask what part of the world you are in???

I hope to hear from you soon

Debi

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#4754 From: Mel Gilbert <doughnutbabeuk@...>
Date: Fri Jul 2, 2004 8:04 pm
Subject: Re: [Neurofibromatosis] hi doughnutbabeuk
Offline
Send Email

Hi Nancy, i am very lonely too would love to chat.
Where are you from. Mel
--- nannygoat30@... <nannygoat30@...>
wrote:
> my name is  nancy and ihave nf.  I am 46 years ol (
well I will be
> on Tuesday.} I  am looking for a female to be
e-mail pen pals
> with, I dont have many friends. and I get lonely .
any one  out
> there lonely and need  a friend to.   Thank you
nancy
>




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#4753 From: "peppermorris23" <nannygoat30@...>
Date: Fri Jul 2, 2004 6:28 pm
Subject: hi peppermorris23
Offline
Send Email

my name is  nancy and ihave nf.  I am 46 years ol ( well I will be
on Tuesday.} I  am looking for a female to be  e-mail pen pals
with, I dont have many friends. and I get lonely . any one  out
there lonely and need  a friend to.   Thank you nancy

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#4751 From: cobrassb140
Date: Mon Jun 28, 2004 11:38 pm
Subject: being single cobrassb140
Offline

Hello all been menbre for a while first time to post,i was wondering
if anyone out there has trouble meeting someone because of NF.Im 41
single and cant seem to meet anyone that will take time to get to
know me,they just wanna judge me.If there is any ladies that want to
chat go to my profile and send me a msg,better mentin seeing this
post thanks

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#4750 From: cobrassb140
Date: Mon Jun 28, 2004 11:37 pm
Subject: being single cobrassb140
Offline

Hello all been menbre for a while first time to post,i was wondering
if anyone out there has trouble meeting someone because of NF.Im 41
single and cant seem to meet anyone that will take time to get to
know me,they just wanna judge me.If there is any ladies that want to
chat go to my profile and send me a msg,better mentin seeing this
post thanks

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#4749 From: kim_mepa
Date: Mon Jun 28, 2004 6:16 pm
Subject: New Photos Of Kim_MePa kim_mepa
Offline

I just added a couple Photos of me to my  file under Kim_MePa Take a
Look .Thanks

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#4748 From: kim_mepa
Date: Mon Jun 28, 2004 6:28 pm
Subject: New Pics in my Folder kim_mepa
Offline

I just added pics to my folder...Kim_MePa Take a Look  Thanks

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#4747 From: "cindystyer" <styer.17@...>
Date: Tue Jun 22, 2004 2:39 pm
Subject: Ribbon Ribs cindystyer
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Hello all,

My step granddaughter has NF and has a tumor in her cheek that part
of was removed this last year with liposuction. Also, doctor
concerned with ribbon ribs. Or pencil ribs they called them
yesterday. Anyone else have this and is there anything they can be
doing to help this not to get worse?

Thanks, Cindy

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#4746 From: Nora Mae <littlenloud@...>
Date: Mon Jun 21, 2004 5:00 pm
Subject: Re: [Neurofibromatosis] Digest Number 347 littlenloud
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yes -- would be happy to hear from her. Take care of yourself too, though.

neurofibromatosis2@yahoogroups.com wrote:

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There are 2 messages in this issue.

Topics in this digest:

1. Re: Digest Number 345
From: cheryal holden
2. Re: Digest Number 345
From: Roger Banks

________________________________________________________________________
________________________________________________________________________

Message: 1
Date: Sat, 12 Jun 2004 10:04:23 -0700 (PDT)
From: cheryal holden
Subject: Re: Digest Number 345

Thank you Nora Mae, I am trying to get her into this group, I really think it would do her some good. Her self esteem is just so low. I honestly can't help her, I can not relate, I do not have NF. Currently I have two ladies in my house, my mother in law and sister in law, they both have dementia, and my time is really ful with them. I feel bad for my sister because I,m not able to spend the time with her like she probably needs, so just as soon as I can convince her, she may be emailing you. The poor girl has lots of issues. I just don't have the emotional stregnth to deal with with all of this right now. I just joined a support group for the dementia issues, and that is helping me. Thanks

Nora Mae wrote:
I'm sorry to be so blunt, but your mother's outlook is very damaging and much of your sister's low self-esteeem can be blamed on your mother. You really need your sister to talk to other people with NF who feel good about themselves and are positive about life. Your mother's bitterness has hurt you because she was angry at you for having it, but it hurt your sister because if your mother saw herself as a freak, then your sister would only assume that that's how her mother (and everyone else) saw her.

I'm so sorry you had to grow up with a mother who treated you like that. I pray every day that my kids will NOT get it; that they will not have go thru this. Not becasue I'd love them less or because I would see them any differently -- but because it is painful (emotionally), and it is difficult. But what makes a person beautiful is what is on the inside. You have that inner beauty, and that is what is going to make a relationship last -- not how long one stays beautiful. Besides... a relationship based soley on physical attraction is very shallow.

I hope your sister can heal, and in time, I hope she will begin to love herself and enjoy life. I'd be willing to communicate with her if she would like. #

Take care,

Nora

There are 2 messages in this issue.

Topics in this digest:

1. sister
From: "cheryalh"
2. Re: sister
From: carolinacpnter@...

________________________________________________________________________
________________________________________________________________________

Message: 1
Date: Tue, 08 Jun 2004 18:40:09 -0000
From: "cheryalh"
Subject: sister

I have a younger sister that has NF, actually three younger sisters.
Our mother also has NF. I never did develope NF and neither has my
daughter. Our mother had a pour outlook regarding the NF, people
stared and she was very self concious. The reason I am writing, my
sister is going thru some emotionally rough times right now, her self
esteem is so low that she found herself looking very closly at her
profile and now regards herself as a monster. To be very honest, I
can not relate to what she feels like and I don't know what to tell
her. If I can get her to agree to it, do you all think that maybe
you guys can help her thru this. She does have an email address, but
I want to get her permission first before I send it out. She also
has other issues that all seem to tie into having NF. Our mother
never dealt with it very well, so I'm sure that has alot to do with
it. Our mother also had other mental problems, I remember her
getting so mad at me because I did not have NF, she would tell me
that when I turned 21 I would wake up one morning with all these
bumps all over and if I was married my husband would leave me and my
children would leave as well. Needless to say, the relationship with
the family is not a very good one. I do care very much for my
sister, but I also know that she will not do the searching for help.
Please let me know what you think.

________________________________________________________________________
________________________________________________________________________

Message: 2
Date: Tue, 8 Jun 2004 18:58:44 EDT
From: carolinacpnter@...
Subject: Re: sister

tell her to e mail me i wont look down on her i have bumps to
feel same as she does

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Message: 2
Date: Sat, 12 Jun 2004 18:31:43 -0700 (PDT)
From: Roger Banks
Subject: Re: Digest Number 345

what should you do if your father has the symptoms of
nf really bad, many tumors including a couple of large
ones and you are afraid you will end up like him? i
only have a few tumors that are visible.

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#4745 From: thomas ross <tiptoe1990@...>
Date: Sat Jun 19, 2004 1:39 am
Subject: Re: [Neurofibromatosis] Hannah tiptoe1990
Offline
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I'm sorry fore not righting i just chect my email. P.S WRITE/BACK?

Elizabeth <elizabeth.tucker@...> wrote:

Hannah has a plexiform above her righ eye, she has regular eye
checks to make sure her eye sight dosnt get worse. She has been
patching every day for 2 years. They have just told her her eye
sight has reached driving standard so good news.

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#4744 From: thomas ross <tiptoe1990@...>
Date: Sat Jun 19, 2004 1:38 am
Subject: Re: [Neurofibromatosis] Hannah tiptoe1990
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I'm sorry fore not righting i just chect my email. P.S WRITE/BACK?

Elizabeth <elizabeth.tucker@...> wrote:

Hannah has a plexiform above her righ eye, she has regular eye
checks to make sure her eye sight dosnt get worse. She has been
patching every day for 2 years. They have just told her her eye
sight has reached driving standard so good news.

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#4743 From: "Elizabeth" <elizabeth.tucker@...>
Date: Tue Jun 15, 2004 9:59 pm
Subject: Hannah bty553586
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Hannah has a plexiform above her righ eye, she has regular eye
checks to make sure her eye sight dosnt get worse. She has been
patching every day for 2 years. They have just told her her eye
sight has reached driving standard so good news.

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#4741 From: Roger Banks <youth_evangelist@...>
Date: Sun Jun 13, 2004 1:31 am
Subject: Re: [Neurofibromatosis] Digest Number 345 youth_evange...
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what should you do if your father has the symptoms of
nf really bad, many tumors including a couple of large
ones and you are afraid you will end up like him? i
only have a few tumors that are visible.




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#4740 From: cheryal holden <cheryalh@...>
Date: Sat Jun 12, 2004 5:04 pm
Subject: Re: [Neurofibromatosis] Digest Number 345 cheryalh
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Thank you Nora Mae, I am trying to get her into this group, I really think it would do her some good. Her self esteem is just so low. I honestly can't help her, I can not relate, I do not have NF. Currently I have two ladies in my house, my mother in law and sister in law, they both have dementia, and my time is really ful with them. I feel bad for my sister because I,m not able to spend the time with her like she probably needs, so just as soon as I can convince her, she may be emailing you. The poor girl has lots of issues. I just don't have the emotional stregnth to deal with with all of this right now. I just joined a support group for the dementia issues, and that is helping me. Thanks

Nora Mae <littlenloud@...> wrote:

I'm sorry to be so blunt, but your mother's outlook is very damaging and much of your sister's low self-esteeem can be blamed on your mother.    You really need your sister to talk to other people with NF who feel good about themselves and are positive about life.   Your mother's bitterness has hurt you because she was angry at you for having it, but it hurt your sister because if your mother saw herself as a freak, then your sister would only assume that that's how her mother (and everyone else) saw her.

I'm so sorry you had to grow up with a mother who treated you like that.   I pray every day that my kids will NOT get it; that they will not have go thru this. Not becasue I'd love them less or because I would see them any differently -- but because it is painful (emotionally), and it is difficult.   But what makes a person beautiful is what is on the inside.   You have that inner beauty, and that is what is going to make a relationship last -- not how long one stays beautiful. Besides... a relationship based soley on physical attraction is very shallow.

I hope your sister can heal, and in time, I hope she will begin to love herself and enjoy life.   I'd be willing to communicate with her if she would like.   #

Take care,

Nora

neurofibromatosis2@yahoogroups.com wrote:
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There are 2 messages in this issue.

Topics in this digest:

1. sister
From: "cheryalh"
2. Re: sister
From: carolinacpnter@...

________________________________________________________________________
________________________________________________________________________

Message: 1
Date: Tue, 08 Jun 2004 18:40:09 -0000
From: "cheryalh"
Subject: sister

I have a younger sister that has NF, actually three younger sisters.
Our mother also has NF. I never did develope NF and neither has my
daughter. Our mother had a pour outlook regarding the NF, people
stared and she was very self concious. The reason I am writing, my
sister is going thru some emotionally rough times right now, her self
esteem is so low that she found herself looking very closly at her
profile and now regards herself as a monster. To be very honest, I
can not relate to what she feels like and I don't know what to tell
her. If I can get her to agree to it, do you all think that maybe
you guys can help her thru this. She does have an email address, but
I want to get her permission first before I send it out. She also
has other issues that all seem to tie into having NF. Our mother
never dealt with it very well, so I'm sure that has alot to do with
it. Our mother also had other mental problems, I remember her
getting so mad at me because I did not have NF, she would tell me
that when I turned 21 I would wake up one morning with all these
bumps all over and if I was married my husband would leave me and my
children would leave as well. Needless to say, the relationship with
the family is not a very good one. I do care very much for my
sister, but I also know that she will not do the searching for help.
Please let me know what you think.

________________________________________________________________________
________________________________________________________________________

Message: 2
Date: Tue, 8 Jun 2004 18:58:44 EDT
From: carolinacpnter@...
Subject: Re: sister

tell her to e mail me i wont look down on her i have bumps to
feel same as she does

[This message contained attachments]

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#4738 From: <cleo5899@...>
Date: Sat Jun 12, 2004 2:00 am
Subject: Re: [Neurofibromatosis] Digest Number 345 cleo5899
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You are so right Nora.........I couldn't of said it better...

Your sister can write to me any time as well.........

It would really make all the difference in the world....

Talking with other who have NF, who understand and have similar feelings SAVED MY LIFE........

I don't know where I would be if I didn't have that........

You cannot begin to know how much it will help her..........tell her to talk to us.........Please...Jenny

----- Original Message -----

From: Nora Mae

To: neurofibromatosis2@yahoogroups.com

Sent: Friday, June 11, 2004 2:25 PM

Subject: Re: [Neurofibromatosis] Digest Number 345

I'm sorry to be so blunt, but your mother's outlook is very damaging and much of your sister's low self-esteeem can be blamed on your mother.    You really need your sister to talk to other people with NF who feel good about themselves and are positive about life.   Your mother's bitterness has hurt you because she was angry at you for having it, but it hurt your sister because if your mother saw herself as a freak, then your sister would only assume that that's how her mother (and everyone else) saw her.

I'm so sorry you had to grow up with a mother who treated you like that.   I pray every day that my kids will NOT get it; that they will not have go thru this. Not becasue I'd love them less or because I would see them any differently -- but because it is painful (emotionally), and it is difficult.   But what makes a person beautiful is what is on the inside.   You have that inner beauty, and that is what is going to make a relationship last -- not how long one stays beautiful. Besides... a relationship based soley on physical attraction is very shallow.

I hope your sister can heal, and in time, I hope she will begin to love herself and enjoy life.   I'd be willing to communicate with her if she would like.   #

Take care,

Nora

neurofibromatosis2@yahoogroups.com wrote:
------------------------ Yahoo! Groups Sponsor --------------------~-->
Make a clean sweep of pop-up ads. Yahoo! Companion Toolbar.
Now with Pop-Up Blocker. Get it for free!
http://us.click.yahoo.com/L5YrjA/eSIIAA/yQLSAA/IjRrlB/TM
--------------------------------------------------------------------~->

There are 2 messages in this issue.

Topics in this digest:

1. sister
From: "cheryalh"
2. Re: sister
From: carolinacpnter@...

________________________________________________________________________
________________________________________________________________________

Message: 1
Date: Tue, 08 Jun 2004 18:40:09 -0000
From: "cheryalh"
Subject: sister

I have a younger sister that has NF, actually three younger sisters.
Our mother also has NF. I never did develope NF and neither has my
daughter. Our mother had a pour outlook regarding the NF, people
stared and she was very self concious. The reason I am writing, my
sister is going thru some emotionally rough times right now, her self
esteem is so low that she found herself looking very closly at her
profile and now regards herself as a monster. To be very honest, I
can not relate to what she feels like and I don't know what to tell
her. If I can get her to agree to it, do you all think that maybe
you guys can help her thru this. She does have an email address, but
I want to get her permission first before I send it out. She also
has other issues that all seem to tie into having NF. Our mother
never dealt with it very well, so I'm sure that has alot to do with
it. Our mother also had other mental problems, I remember her
getting so mad at me because I did not have NF, she would tell me
that when I turned 21 I would wake up one morning with all these
bumps all over and if I was married my husband would leave me and my
children would leave as well. Needless to say, the relationship with
the family is not a very good one. I do care very much for my
sister, but I also know that she will not do the searching for help.
Please let me know what you think.

________________________________________________________________________
________________________________________________________________________

Message: 2
Date: Tue, 8 Jun 2004 18:58:44 EDT
From: carolinacpnter@...
Subject: Re: sister

tell her to e mail me i wont look down on her i have bumps to
feel same as she does

[This message contained attachments]

________________________________________________________________________
________________________________________________________________________

------------------------------------------------------------------------
Yahoo! Groups Links

<*> To visit your group on the web, go to:
http://groups.yahoo.com/group/neurofibromatosis2/

<*> To unsubscribe from this group, send an email to:
neurofibromatosis2-unsubscribe@yahoogroups.com

<*> Your use of Yahoo! Groups is subject to:
http://docs.yahoo.com/info/terms/

------------------------------------------------------------------------

"Although the world is full of suffering, it is also full of the overcoming of it."
- Helen Keller

Do you Yahoo!?
Friends. Fun. Try the all-new Yahoo! Messenger

Reply | Forward | Messages in this Topic (4)

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