Hope everyone is well and hope everyone is having a good time. I am in the process of deleting messages that do not have anything to do with nf and in some...
hi everyone wow i totally forgot about brians site its been so long i stopped going into room when we were getting alot of trouble makers..sry. But we...
Greetings, My Neighbor's Granddaughter Bethany is 3 and has Neurofibromatosis. She has recently had a few strokes, become blind, and had half her brain removed...
... with ... keep ... Hi Chatty Catty, i used to come in this room to so hello to an old member.Glad to hear things are going well.and hope to stay in touch,...
HI, i've been away for a while... stopped coming when we kept getting so many spams, but there just arent' any other groups out there like this one. :) Have...
Bill, you prolly should go and get it checked out -- it might start affecting your vision. I have tumors on head, underneath scalp, but have not had any brain...
Hi Littlenloud! Just wanted to respond to your mail. My sister....who has NF...and may have read your message or is reading this had spinal surgery to have a...
I met my husband online (1999). We chatted for a few weeks, and decided we wanted to meet. We met doing the Jimmy Fund walk and have been doing it every year...
cool -- he sounds like a real gem! :D Congrats on your marriage. :D ... decided we ... doing it ... friends for ... proposed in ... side the ... did. I would...
Thanks! What part of the UK are you from? My fiancee is from the West Midlands. :) ... NF tumor and would be happy to talk to you about it feel free to mail...
hi, I live in Bristol. Mel littlenloud@... wrote: Thanks! What part of the UK are you from? My fiancee is from the West Midlands. :) ... NF tumor and...
Well, talked to doctor today, and he doesn't want to do the surgury unless we absolutely have to. Actually, there are tumors on each level, but there is one...
Nora, Hi my name is Rhonda im 37 yrs old. The nerve that you are talking about in your leg, I had removed going on 15 yrs now, yes there is muscle weakness and...
Thanks Rhonda, Sounds like you had the same kind of tumor to have that done. Sorry you had to go through that, it sounds scary, although you sound pretty ...
hi im new here. my name is trish. i have nf. i am 22 years old. i know only one other person that has nf and she is 9 years old. i met her at a school for kids...
... dress the ... LOL, Cool see my profile. Wherte are you? i sw The Ramones a few times. they are all dying off now tho, like the New York Dolls. gotta go!!...
Why can't you work? If you have complications from NF, then your doctor should be able to affirm that you are unable to work because or the health problem....
lol, love the name, dave. I haven't heard the term "git" for awhile, lol. I like all kinds of music, but I do like some punk rock. Like alot of alternative...
lol, I don't dress that way either. London is hip, you can get away with it, but I live in a small town, where purple hair stops traffic. ... dress the...
My daughter is 10 (she'll be 11 Thursday) and she just discovered and fell in love with "goth" clothing. when I was a teen, I remember the style being called...
definitely like alternative music....love The Smashing Pumpkins and Alice in Chains. Not sure if it is what a ten year old would like, though! ... Service....
Love the smashing plumpkins... :P Who sings that song, "I'll treat you well, my sweet angel..." I have it in my head but I can't think of the name now... lol,...
lol, i love my dog too. :) you can't see it in pic (I look pretty tame,lol), but I DO have a few peircings... lol...nose, tongue and navel, but have to take...
um, let me thinkg... Avril Levigne seems to have pretty clean lyrics, as well as MXPX. I think most cd's that AREN'T age appropriate come with a "parental...
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