Hey you all - I used to post every now and then on this group but I stopped due to being really busy. Anyway - I have NF1 and I was wondering if anyone knows...
I live in Japan but I've never heard anything about these treatments -- though I am skeptical. My wife goes in for one of her NF1 doctors appointments at...
How is everyone out there is the big wide world? Im very well, mainy apologises for not been around lately but lve been busy. Keep in contact and hope to see...
Hi there Over the last few weeks i have been having very bad memory loss, both short and long term !! I am due to see my neurologist next week about it. I was...
... both short ... it. I was just ... what was ... Hi Steven, I also have a lot of problems with my memory. I have trouble finding words to say what I want to...
I cannot say I have ever experienced this, although, I do sometimes have a hard time finding the right words or the proper word or term I am searching for to...
I have experienced this before, but not because of NF. I have hydrocephalus, and short term memory is a key sign my shunt is starting to malfunction. Melissa ...
hey hey, just thought id tell you guys about this free debt consolidation site that reduced my monthly payments by damn near half, no more worries about bills!...
Im going through what i would call major stress at the moment and have visited my neurologists in the meantime. He told me that the two are not normally...
I do feel that stress causes the nf tumors to stick out more or become more visible. The ones that are not as noticeable seem to pop out. I know others with...
I appreciate the feed back. I do think there is a link. I also have MS, and I know that stress can really affect that too. But this stressful situation I am...
I have a younger sister that has NF, actually three younger sisters. Our mother also has NF. I never did develope NF and neither has my daughter. Our mother...
I'm sorry to be so blunt, but your mother's outlook is very damaging and much of your sister's low self-esteeem can be blamed on your mother. You really...
You are so right Nora.........I couldn't of said it better... Your sister can write to me any time as well......... It would really make all the difference in...
Thank you Nora Mae, I am trying to get her into this group, I really think it would do her some good. Her self esteem is just so low. I honestly can't help...
what should you do if your father has the symptoms of nf really bad, many tumors including a couple of large ones and you are afraid you will end up like him?...
Hannah has a plexiform above her righ eye, she has regular eye checks to make sure her eye sight dosnt get worse. She has been patching every day for 2 years....
yes -- would be happy to hear from her. Take care of yourself too, though. There are 2 messages in this issue. Topics in this digest: 1. Re: Digest Number 345...
Hello all, My step granddaughter has NF and has a tumor in her cheek that part of was removed this last year with liposuction. Also, doctor concerned with...
Hello all been menbre for a while first time to post,i was wondering if anyone out there has trouble meeting someone because of NF.Im 41 single and cant seem...
Hello all been menbre for a while first time to post,i was wondering if anyone out there has trouble meeting someone because of NF.Im 41 single and cant seem...
my name is nancy and ihave nf. I am 46 years ol ( well I will be on Tuesday.} I am looking for a female to be e-mail pen pals with, I dont have many...
Hello Nancy, It's very nice to chat with you... I also have NF and am 45 years old... I
live in Texas, may I ask what part of the world you are in??? I hope to...
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