Hello everyone I am a new old member. I am a member of some other NF groups of Brians and I am joining this one now. My old user ID is cainsrevenge. I had...
Hello everyone I am a new old member. I am a member of some other NF groups of Brians and I am joining this one now. My old user ID is cainsrevenge. I had...
Hi, I understand that you are probably scared. I have Nf1 also. Have you been to the Nf.org site at all ? There you will find a bulletin board and alot of...
I am currently 30 years old and I am the mother of a 4 1/2 year old daughter who has NF1. I am trying to figure out how i want to help her and all the others ...
My Aunt lost both of her legs and my sisters son lost one of his legs.... all due to NF.... ... From: babybearhugs27 To: neurofibromatosis2@yahoogroups.com ...
Hi, My name is Jenny...I am 45 and I have NF. At birth I had pseudoarthrosis in my right leg. This is the thinning and bowing and possibly breaking (as it was...
FAQ about Islam (Frequently Asked Questions) Who is Allah? Allah means God. It is a personal name, which Allah calls Himself in the Koran. That is where we get...
Apparently, I suffer from depression. but the Psychaitrist things its due to OCD. :) Its OK to be depressed. Having NF1, as many of us do, certainly doesn't...
hello, i'm new here, and glad to have found this site. :) Am looking for local support groups that meet in my area - am in Wisconsin, but not very close to...
Hi -- I read in an NF newsletter awhile back that while a pregnante woman's condition seemed to worsen with pregnancy, due to the hormones being increased,...
Hi, I'm only 26, but I have chronic back pain, and my biggest worry though, is pain in my joints. I'm pretty young to have arthritis, and my doctor laughed it...
They have told me the same thing for years now... I think they just don't
know to tell you the truth.... I've had bad headaches all my life and they
keep...
Interesting, but if Allah is perfect, how can he create bad? Surely one that is perfect would be incapable of thinking evil, so therefore, how could he...
Thanks -- short of removing the tumors, which would leave several shaved patches on my head which wuold give me a rather interesting look, I can't see what...
Well I dont think that the doctors that are telling you that the tumors cant becausing the pain need to go back to school. My neurologist and the NF...
I have the same thing, only Im 37. I have chronic back pain and pain in all my mucles and joints especially when its raining or during the cold winter months....
I think its more interesting that the post was completely off topic... other than to say that I am being punished by God from conception. ... Surely ... ...
Thanks for the replies. I've had other tumors removed -- just not the ones on the head yet. I guess my biggest frusteration is that doctors DON'T know -- my...
skywarn, in case there was some confusion, my post was a response to the original FAQ post... :P Don't want you to think that's what I think. ... babies ... ...
Sorry I cannot give you any answers or direct you. I was curious if you have any other NF1 symptoms such as growths on the skin. Or, did you notice any...
May I ask where you are from littlenloud? littlenloud@... wrote:Thanks for the replies. I've had other tumors removed -- just not the ones on the head ...
I think that everyone does have a right to their beliefs and religion. I know all religons teach you that there is only one religon and that the one you serve...
I couldn't agree with you more. "Why me" is a people favourite!! Well why not you ?? Would you wish this on someone else ?? cause i know i wouldn't enemy or...
Heh.. I know. This post is spam thats been floating around in a lot of groups. ... to ... <no_reply@y...> ... How ... revolting ... God ... senstivity....
I'm not sire how this really applies to NF... But I would like to post this
since it has been started up..... Don't Muslims worship the same God as Christians?...
cool, debi, thanks. :) ... post this ... same God. ... not ... societies have ... for ... show ... Mohammed ... fertility ... dominant ... Mecca ... was a ... ...
First off, i'm so happy to have found this site!!! it is such a relief to read these posts and realize there are people I can talk to about this. :) my...
Yes, I have a few on my skin, although its very mild. I have more trouble with the little bumps on my skin -- at first i thought it was acne, but when i went...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
