has any one had any pain in feet or ankle i have been haveing really bad pain in my left ankle thru out the day it makes me walk with a limp goes away...
I would think that pain n the foot/feet area could be caused for a variety of reasons. If you are on your feet a lot....this could be why and maybe just...
I have pain in my feet when I walk. I have to wear shoes and socks cuz It is WAY to painful to go barefooted. I have a tumor on the bottom of my right foot...
my neice has nf2 she is 7yrs old now. she had tons of surgeries when she was 6yrs old. where would i find answers on how long people live with nf2? and how the...
If they already know that she has NF how do they know it is NF2? Usually nf2 doesnt show up until much later in life(late teens early 20's). NF1 is usually the...
Here is a site that may be helpful. It explains NF1 and NF2. The way I remember what chromosone is responsible for NF2 is 22, as it is the more severe of the...
... early ... Her 22 chromsone is mutated she also has lost 70% of her vision, and has had surgery to remove blastomia cancer from spine and her stomache and...
Hello All, I hope you all are doing good. I just have corcerns and questions. I am making a big decision right now about my leg. I have NF2, and mostly have...
Hi babybear What kind of problems are you having first of all. I had a tumor connected to the femural nerve in my left leg which was cancerous (its been 14...
Hello Rhonda, Thank you for your response and concern. I am having alot of pain and discomfort. It's my right leg that is causing me lots of trouble, It...
well i am bipolar II which means that at times i am depressed and i think it is partly due to the fact that i dont know what is going to happen to me. ... ...
Hi. My daughter will soon be 14 months old. Since she was 3 days old, she has been developing cafe ole spots. She now has approx 18 of them. We have since...
Hello everyone I am a new old member. I am a member of some other NF groups of Brians and I am joining this one now. My old user ID is cainsrevenge. I had...
Hello everyone I am a new old member. I am a member of some other NF groups of Brians and I am joining this one now. My old user ID is cainsrevenge. I had...
Hi, I understand that you are probably scared. I have Nf1 also. Have you been to the Nf.org site at all ? There you will find a bulletin board and alot of...
I am currently 30 years old and I am the mother of a 4 1/2 year old daughter who has NF1. I am trying to figure out how i want to help her and all the others ...
My Aunt lost both of her legs and my sisters son lost one of his legs.... all due to NF.... ... From: babybearhugs27 To: neurofibromatosis2@yahoogroups.com ...
Hi, My name is Jenny...I am 45 and I have NF. At birth I had pseudoarthrosis in my right leg. This is the thinning and bowing and possibly breaking (as it was...
FAQ about Islam (Frequently Asked Questions) Who is Allah? Allah means God. It is a personal name, which Allah calls Himself in the Koran. That is where we get...
Apparently, I suffer from depression. but the Psychaitrist things its due to OCD. :) Its OK to be depressed. Having NF1, as many of us do, certainly doesn't...
hello, i'm new here, and glad to have found this site. :) Am looking for local support groups that meet in my area - am in Wisconsin, but not very close to...
Hi -- I read in an NF newsletter awhile back that while a pregnante woman's condition seemed to worsen with pregnancy, due to the hormones being increased,...
Hi, I'm only 26, but I have chronic back pain, and my biggest worry though, is pain in my joints. I'm pretty young to have arthritis, and my doctor laughed it...
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