I just finished writing a long letter for my insurance company hoping they will send me to a NF clinic in Cleveland Ohio, even if I get to go they will be out...
My son has NF1 He has cafe-au lait spots all over his body one is large enough to cover her knee cap. He waS diagnosed with it last yr. They found a less than...
I have a question concerning SSDI. I have NF, and one of my fingers is affected, It is the hand I write with (I am right handed). I am wondering if you have...
Hello, well i dont think being single has anything to do with it. What i would do is go to www.ss.gov and look up the disablity and then there is a section to...
Hi, I recently applied for SSI for my daughter with NF...we are in the process. She had a brain tumor removed in September and they just had her have an...
has any one had any pain in feet or ankle i have been haveing really bad pain in my left ankle thru out the day it makes me walk with a limp goes away...
I would think that pain n the foot/feet area could be caused for a variety of reasons. If you are on your feet a lot....this could be why and maybe just...
I have pain in my feet when I walk. I have to wear shoes and socks cuz It is WAY to painful to go barefooted. I have a tumor on the bottom of my right foot...
my neice has nf2 she is 7yrs old now. she had tons of surgeries when she was 6yrs old. where would i find answers on how long people live with nf2? and how the...
If they already know that she has NF how do they know it is NF2? Usually nf2 doesnt show up until much later in life(late teens early 20's). NF1 is usually the...
Here is a site that may be helpful. It explains NF1 and NF2. The way I remember what chromosone is responsible for NF2 is 22, as it is the more severe of the...
... early ... Her 22 chromsone is mutated she also has lost 70% of her vision, and has had surgery to remove blastomia cancer from spine and her stomache and...
Hello All, I hope you all are doing good. I just have corcerns and questions. I am making a big decision right now about my leg. I have NF2, and mostly have...
Hi babybear What kind of problems are you having first of all. I had a tumor connected to the femural nerve in my left leg which was cancerous (its been 14...
Hello Rhonda, Thank you for your response and concern. I am having alot of pain and discomfort. It's my right leg that is causing me lots of trouble, It...
well i am bipolar II which means that at times i am depressed and i think it is partly due to the fact that i dont know what is going to happen to me. ... ...
Hi. My daughter will soon be 14 months old. Since she was 3 days old, she has been developing cafe ole spots. She now has approx 18 of them. We have since...
Hello everyone I am a new old member. I am a member of some other NF groups of Brians and I am joining this one now. My old user ID is cainsrevenge. I had...
Hello everyone I am a new old member. I am a member of some other NF groups of Brians and I am joining this one now. My old user ID is cainsrevenge. I had...
Hi, I understand that you are probably scared. I have Nf1 also. Have you been to the Nf.org site at all ? There you will find a bulletin board and alot of...
I am currently 30 years old and I am the mother of a 4 1/2 year old daughter who has NF1. I am trying to figure out how i want to help her and all the others ...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
