Hi everyone Its been awhile.A lot of you probably don't remember me. I've been doing good lately. I recently got married in September. I also have a good job...
From the people that I know with NF(my daughter, her father and aunt, and her grandpa), there is depression for sure. Also, there tends to be insomnia, which...
Hi, I have a question that I would love to get some feedback on. I live in a fairly small town (about 15,000 people). My daughter who is nine has NF1....
hi, my daughter is 7 and has nf1. I see that your daughter is nine. I just wondered what symptoms of the disease she has right now. My daughter just has the...
That is a very good question and I really dont know what to say because I am kinda in the same boat too. I have NF 1 and have never actually seen anyone/ ment...
I would say ask. I have first hand knowledge that you might find it may bring relief to the person in question. I would much prefer somone come up to me and...
I find this conversation very interesting because I had a neighbour who I was convinced had NF because of the lumps on her face, CALS etc. I never had the...
I have also on several occasions seen people who I thought had NF. I was sorry I did not approach them. On one occasion, I was going to....there was a woman...
It doesn't hurt to ask. You never know you might make a friend for life. This person may have NF and might be just as afraid top ask just as you are. The worst...
Yes there is three of my kids who have nf 1 also have pshlo logy disorders as well on is bi polar and the other two have emotion al problems shelley...
Pay attention to how people are treated who have NF and you could see why they may suffer from depression. I think it would be hard to prove that it may be...
I dunno about any of that, but I have personally decided to not have any kids of my own. I simply don't want to deal with all the complications that may...
YES I AM GOING TO THE CAMP IN SATL LAKE THE ONE THAT IS JULY 30 TO AUG 8 . AND I WILL BE GOING TO THE FAMLIY CAMP THAT HERE IN TX MY EMAIL IS THIS ONE CAN...
If your bump itches constantly, I would get a second opinion. Not to scare you or anything, but I would set a literal dig my leg raw the doctors found a lump...
TO HAVE KIDS OR NOT HAVE KIDS IS A PERSONAL CHOICE. IN DEALING WITH NF I ALSO DO NOT HAVE KIDS. 50/ 50 CHANCE IS A HIGH RISK. Rebecca <rjuodvalkis@...>...
HI NOT A BAD IDEA BUT I AHVE VERY DRY SKIN. MY LEG IS ALL HEALED NOW. I HAVE MANY BUMPS BUT THANK YOU FOR THE INFOR. I AM SO HAPPY FOR YOU. CANCER FREE. HAVE A...
Hi, I have not been here for awhile, this has happened only about 8 times inmy life, I had a little of one yesterday on mon 4-7-03 and a bigger one on Sat. the...
Well I know that this has never happened to me, I am now 22 years old, and I have known about my NF since i Was in the third grade. I do get headaches, and I...
Is anyone out there Haven't heard from anyone in awhile I have a question Has anyone out there or know anyone who has N.F. (dugh dumb question) Do you or...
Just curious about the rods fused to your spine.....Did you have scoliosis? I'm wondering because my daughter's father had a metal rod in his back as well....
Hi everyone This is just a quick question. Does anyone out there with NF1 also have seizures/ Epilepsy I started having seizure about 2 years ago and my (very...
Yes I have the rods in my back because of Scoliosis I had them since I have been 8 years old. I have Scoliosis because of the NF. Has anyone out there, or...
I am sorry I do not know if seizures and Epilepsy is from NF I can tell you that I never had those problems. I do however have itching on my bumps sometimes....
Hi I also have seizures (pet mal) they started about 4 years ago but with the meds I am doing good. I have read that to too are related ans have talked to a...
Hi everyone wanted to let you all know that some of us meet for a chat night in the nfhelpchat room/club on tuesday nights If you would like to set up a night...
My computer at home is kinda crap so I use the one here at work from like 8:30 - 5:30. Sorry I can not join the chat untill I get a better computer. Keep me...
My father suffered from epilepsy and had seizures regularly for most of his life. He has NF. Almost two years ago he underwent brain surgery to remove the...
cyberwaif2000 <no_reply@yahoogroups.com> wrote:I have a 13 yr old niece with NF 1 who has petite mal seizures. She sometimes has as many as 8 or 10 a day. She...
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