neurofibromatosis2 : Messages : 4220-4249 of 6797

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4220	Hello to everyone~ It has been quiet around here. Hope everyone is doing well. For many of us, we are thawing out, huh?? Ready for Spring yet? I wanted...	sugarrita1	Mar 15, 2003 2:38 am
4221	Hello I'm Monique from the Netherlands and I joined this group a couple of month's ago when we found out that our youngest daughter Jiska (3 years old now) has...	Monique M monique_mano...	Mar 15, 2003 10:39 am
4222	Monique M <monique.m@...> wrote:Hello I'm Monique from the Netherlands and I joined this group a couple of month's ago when we found out that our youngest...	Dora Forfar dodie_64	Mar 15, 2003 3:09 pm
4223	... have ... Hi I have not had the experienc from the white caf spots but have the brown ones and have not had any trouble from them event in the summer but i...	mtxriverrat	Mar 15, 2003 3:32 pm
4224	Hi Dora, I found your post very interesting because my daughter is 7 years old, was diagnosed when she was 4 years old, though I suspected earlier than that (...	leanna96	Mar 15, 2003 4:49 pm
4225	necesito hablar con alguin que tenga nf1 y hable espanol urgente. maria fernanda...	mafernavarro	Mar 15, 2003 10:49 pm
4226	For NF site in Spanish, go to NF.ORG and click Spanish link. Tom P....	tfytmp	Mar 15, 2003 11:51 pm
4227	Hi Kim. I'm curious to know who diagnosed your daughter?? I went to many physicians, and they all thought I was just an over-concerned mom before a regular...	Dora Forfar dodie_64	Mar 16, 2003 3:12 am
4228	Hi I am new to PCs and the internet. I have nf1 (plexiform). Would like to make contact with others in the UK. dmorrison@......	Dave sillygothgit	Mar 17, 2003 10:18 am
4229	Hi Dave. My name is Dora and my daughter, Robyn has NF 1 also. I live in the States-Michigan, but would enjoy talking with you. How old are you? When were...	Dora Forfar dodie_64	Mar 17, 2003 12:39 pm
4230	I would especially like to hear from fellow Goths/Punks/Rockers/Alternative people with nf. Email me....	Dave sillygothgit	Mar 17, 2003 3:05 pm
4231	Hi... I 25 years old, have NF1. (I hate doint this, I have no idea what to say) I have several (well, more than several) of the spots, and have found a couple...	likearock_hillt	Mar 17, 2003 4:15 pm
4232	Hola Maria Fernanda, Me llamo Sara y soy de Espa�a. Yo no tengo NF1 pero tanto mi hermana como yo somos miembros activos de la asociaci�n de Cantabria y...	Sara Castro saracastro2000	Mar 18, 2003 5:26 pm
4233	Hello. I hope you can read English! Because I can not read Spanish "sorry" Dave ... _________________________________________________________________ Use MSN...	dave morrison sillygothgit	Mar 18, 2003 6:59 pm
4234	I dont know about any of you but sometimes my bumps specally the one on my arm really itches sometimes. I went to the dr. and he said If it dosent hurt there...	Karate Dove karatedove	Mar 18, 2003 7:25 pm
4235	ooh sorry I did not realize that replying to that email would come uo on here!!...	Dave sillygothgit	Mar 19, 2003 2:02 am
4236	HI DOES THE VIT E WORK? BECAUSE MY SKIN ITCHES LIKE CRAZY I AM HAVING SOME REMOVED OFF MY EYE LIDS. I WILL LOOK INTO VIT E. Karate Dove <KarateDove@...>...	CAMERON SHEELEIGH cam11956	Mar 20, 2003 9:08 pm
4237	hello, i just wanted to know if anybody was going to camp or if any of your kids were?...	carrieashley	Mar 23, 2003 6:48 pm
4238	NO I AM NOT GOING TO CAMP. I ALSO DO NOT HAVE KIDS carrieashley <no_reply@yahoogroups.com> wrote:hello, i just wanted to know if anybody was going to camp or...	CAMERON SHEELEIGH cam11956	Mar 23, 2003 11:36 pm
4239	Hello! Don�t worry Dave, we know a little of English so we can understand each other easily, Sara. dave morrison <sillygothgit@...> wrote:Hello. I...	Sara Castro saracastro2000	Mar 26, 2003 10:31 pm
4240	does anyone here know if there is a higher rate of Psychological Disorders in people who have NF1 and if so what are the common disorders?...	Roger Banks youth_evange...	Apr 2, 2003 9:40 pm
4241	Hi everyone Its been awhile.A lot of you probably don't remember me. I've been doing good lately. I recently got married in September. I also have a good job...	pinkfloyd_4ever	Apr 3, 2003 1:33 am
4242	From the people that I know with NF(my daughter, her father and aunt, and her grandpa), there is depression for sure. Also, there tends to be insomnia, which...	Brandy Hinrichs humboldtgirls	Apr 3, 2003 3:35 am
4243	Hi, I have a question that I would love to get some feedback on. I live in a fairly small town (about 15,000 people). My daughter who is nine has NF1....	humboldtgirls	Apr 3, 2003 3:47 am
4244	hi, my daughter is 7 and has nf1. I see that your daughter is nine. I just wondered what symptoms of the disease she has right now. My daughter just has the...	kim richards leanna96	Apr 3, 2003 3:58 am
4245	That is a very good question and I really dont know what to say because I am kinda in the same boat too. I have NF 1 and have never actually seen anyone/ ment...	Karate Dove karatedove	Apr 3, 2003 2:38 pm
4246	I would say ask. I have first hand knowledge that you might find it may bring relief to the person in question. I would much prefer somone come up to me and...	Juliana jules98422	Apr 3, 2003 8:57 pm
4247	I find this conversation very interesting because I had a neighbour who I was convinced had NF because of the lumps on her face, CALS etc. I never had the...	wendysguk	Apr 3, 2003 10:02 pm
4248	I have also on several occasions seen people who I thought had NF. I was sorry I did not approach them. On one occasion, I was going to....there was a woman...	sugarrita1	Apr 4, 2003 12:59 am
4249	It doesn't hurt to ask. You never know you might make a friend for life. This person may have NF and might be just as afraid top ask just as you are. The worst...	sweetnuttin00	Apr 4, 2003 2:45 am

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