Hello, Everyone I have been under quite a lot of stress recently and both my CALs and the lumps and bumps seem to increasing. Does anyone know if there is a...
Wendy, It may or may not be stress related. In the natural progression of NF you eill get more and more Fibromas as you get older. I have many more now than...
HI WENDY FUNNY YOU SHOULD SAY THAT BECAUSE MY BUMPS ARE ALSO COMING OUT MORE I THINK STRESS HAS ALOT TO DO WITH IT UNSURE IF THE DR'S WOULD AGREE WITH ME....
I would be inrerested in more feedback on this subject from others. I also am aware that hormonal changes can cause growth spurts as it did me during my...
Isugarrita1 <no_reply@yahoogroups.com> wrote: I HAVE HAD SOME REMOVE ONLY TO FIND THEY COME BACK. THAT IS WHAT I GET THE MOST UP SET ABOUT I HAVE NOT HAD THEM...
Wendy, I too have noticed more bumps and such when I am really stressed out. Also when I have a glass of wine it makes my bumps seem more evident. (does this...
About the bumps I heard that Vitamin E helps slow them down, and well alittle Vitamin E every day cant hurt you can it? I know that its expensive I heard from...
Sherri, I have also heard about vitamin E slowing growth of tumors but do not know of anyone who could testify to that. Myself, during both my pregnancies,...
I don't know about V-E slowing the growth of NF down any I've been taking V-E every day for about 4 years, cant really tell you if it has helped or not. I've...
Dear everybody Thanks for all your helpful comments to my query. I will try the Vitamin E. I certainly agree there is some sort of hormonal connection. I ...
Please bear with me as I am totally sick right now.. When I am stressed, ican feel the bumps. especillly on my back. It feeels as if someone were pinching me...
Hi All What I found when I was a little bit stressed, under pressure and / or worried, was that the lump above my left eye (this is where my nf has affected me...
I HAVE GOTTEN FAR WORSE AS I GOT OLDER. MY FACE IS BREAKING OUT I AM VERY UP SET ABOUT THIS. SOME TIME I DO PLAN TO HAVE THEM REMOVED WHEN I FIND A DOCTOR THAT...
Hi Rita I have been led to believe that you can't be a silent "carrier" of NF. Drs have told me that you must have some physical sign of the disorder i.e. CAL...
You are correct Karen, You cannot be a "carrier" of NF. Since it is a dominant gene if you have the gene you will have some sign of it....however mild or ...
I have NF and nither one of my parent have it. Mine was do to a spontanious mutation too. Most of the cafe spots are usually under the arm pits and around the...
HIi there, Since your NF was a spontaneous mutation your children have a 50% chance of getting it. If they are lucky and do not get it ........they will not...
Sherri: Hello its SherrIE from Florida. I had my first child in 2000 at age 34 and the bumbs I have are all the sub cutaneous kind (look like bug bites and are...
Hi again, My son is aged 9 & has the CAL spots mainly on his left side of his body and a large number on his left thigh. He also has lisch nodules in both...
my son has got low muscle tone and is very flexible, he can walk but he is unstable and wobbly, he falls frequently and does not put his hands out to save...
HI SOUNDS LIKE HE DR ARE NOT GIVING ANY ANSWERS. HOW ABOUT A BRACE TO HELP! ALSO A WALKER HOW OLD IS YOUR SON.WHAT ABOUTUT THERPY? DOES HE GO TO SCHOOL. IS...
Hello, My name is Jenny and I am 44 with NF1 and pseudoarthrosis....Pseudoarthrosis is the thinning of one of the long bones in the body (i.e. leg or arm) in...
Have any of you ever experienced muscle wasting with this disease? I have been suffering with leg pain for over 2 yrs. I have NF 1 and severe restless leg...
I know a wonderful Hospital that will check your son out for free WONDERFUL hospital Shriners Hospital there number ( the only one I have with me is (410)...
That is a very good suggestion Shriners is a wonderful Hospital. There are Shriner's Hospitals in several locations. My neice is currently being seen at...
hiya all my name is bob and have nf2 im tottaly deaf with a few other problems but not to bad i live in the uk im male age 44 have two children that are fine...
HI BOB MY NAME IS CAMERON I AM A FEMALE YEP! I KNOW CAMERON IS A BOY'S NAME. ANYWAY I JUST TURNED 47. I LIVE IN THE U.S.A. I HOPE WE CAN BE E MAIL FRIENDS. I...
I know, its 6 months away, but will mention it anyway: Mark your calendar for the 12th Annual NF Family Camp on September 5- 7, 2003 at Camp For All in Burton,...
Thats great but Im not in Texas Anyhting in Maryland I can find out about? ... Do you Yahoo!? Yahoo! Tax Center - forms, calculators, tips, and more [Non-text...
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