Thank you for the new year greeting, needed that! Hope that 2003 will bring you great wealth and great health! (Tammy in Texas) ... CAMERON SHEELEIGH...
Hi everyone, I hope you all had a very good christmas, and are starting out the new year with all good things happening. I haven't been here for a while, I...
I have been really busy with working 2 jobs and still trying to have fun with friends Im only 22 and we only live once. So just a post to say Im still alive...
... Have been very busy with the holidays and so forth. My family from Missouri just moved back here and was with me for a couple of months so I have not had...
HI SKYWARN96 COLD HERE WHERE I LIVE. NO ONE IS POSTING ANY MESSAGES. BYE skywarn96 <no_reply@yahoogroups.com> wrote:Where is everyone? Noone is posting! ...
Hello sherrey, Cool name by the way. I know what you mean by being busy. I am kinda in the process of changing a love releationship into a very, very...
We are doing ok here in Florida. It is very cold here for FL as it is almost 10am and only 34F outside and breezy. My job is going well working a lot to get ...
... Idaho and I also have nf1. I had my back fused when I was about 18 only one rod tho. Now they say they should have put 2 in, but because of my lungs they...
This has nothing to do with Neurofibromatosis but please take the time to read this. As many of you know, there is a chance our country may be going to war...
hello I have been maria and I had NF1 for 30 year ago. for my this condiccion genetica is normal.pero last year conoci to hombre.que never wanted to be with me...
Hi all wanted to let you all know that some of us have been meeting it Thenfhelpchat room on tuesday nights @ 6 pm Texas time if anyone want to come it would...
Hello, Everyone I have been under quite a lot of stress recently and both my CALs and the lumps and bumps seem to increasing. Does anyone know if there is a...
Wendy, It may or may not be stress related. In the natural progression of NF you eill get more and more Fibromas as you get older. I have many more now than...
HI WENDY FUNNY YOU SHOULD SAY THAT BECAUSE MY BUMPS ARE ALSO COMING OUT MORE I THINK STRESS HAS ALOT TO DO WITH IT UNSURE IF THE DR'S WOULD AGREE WITH ME....
I would be inrerested in more feedback on this subject from others. I also am aware that hormonal changes can cause growth spurts as it did me during my...
Isugarrita1 <no_reply@yahoogroups.com> wrote: I HAVE HAD SOME REMOVE ONLY TO FIND THEY COME BACK. THAT IS WHAT I GET THE MOST UP SET ABOUT I HAVE NOT HAD THEM...
Wendy, I too have noticed more bumps and such when I am really stressed out. Also when I have a glass of wine it makes my bumps seem more evident. (does this...
About the bumps I heard that Vitamin E helps slow them down, and well alittle Vitamin E every day cant hurt you can it? I know that its expensive I heard from...
Sherri, I have also heard about vitamin E slowing growth of tumors but do not know of anyone who could testify to that. Myself, during both my pregnancies,...
I don't know about V-E slowing the growth of NF down any I've been taking V-E every day for about 4 years, cant really tell you if it has helped or not. I've...
Dear everybody Thanks for all your helpful comments to my query. I will try the Vitamin E. I certainly agree there is some sort of hormonal connection. I ...
Please bear with me as I am totally sick right now.. When I am stressed, ican feel the bumps. especillly on my back. It feeels as if someone were pinching me...
Hi All What I found when I was a little bit stressed, under pressure and / or worried, was that the lump above my left eye (this is where my nf has affected me...
I HAVE GOTTEN FAR WORSE AS I GOT OLDER. MY FACE IS BREAKING OUT I AM VERY UP SET ABOUT THIS. SOME TIME I DO PLAN TO HAVE THEM REMOVED WHEN I FIND A DOCTOR THAT...
Hi Rita I have been led to believe that you can't be a silent "carrier" of NF. Drs have told me that you must have some physical sign of the disorder i.e. CAL...
You are correct Karen, You cannot be a "carrier" of NF. Since it is a dominant gene if you have the gene you will have some sign of it....however mild or ...
I have NF and nither one of my parent have it. Mine was do to a spontanious mutation too. Most of the cafe spots are usually under the arm pits and around the...
HIi there, Since your NF was a spontaneous mutation your children have a 50% chance of getting it. If they are lucky and do not get it ........they will not...
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