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oh boy i would love to go but the problem is money i dont have the moeny to pay for the tickets or anything is to bad i would love ot meet other people that has nf im a single mom my job dont pay much jsut barly pay my bills and feed my girls, but thanks for the invitation. may be in couple years when i have more money. or this convention is close to home here in tx may be not sure. but thanks anyway.
TESSY, DESTINY  , ANDREA MERINO-------Original Message-------
From: Peter
Date: 10/06/2009 06:46:15 p.m.
Subject: [Neurofibromatosis] For people who live close to Cedar Point I am planning a trip to Cedar Point in Sandusky Ohio, on aug 28-30. I am inviting everyone with NF or affected by it to come and make this a NF Gathering. I setup a website to give all the information. It is up to you to make reservations and buy your tickets. Please pass the word even if you can't go. I hope to see you there, even if it is for just one of the days. | ||||||
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