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Reply | Forward Message #6498 of 6809 |
Re: [Neurofibromatosis] I'm new.

you're 100% right,  it used to be that way, but something along the years went astray,  it's sad.


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Wed Feb 4, 2009 7:36 pm

ny_werewolf
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Message #6498 of 6809 |
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Yes, I know. But we live in a sinful world, so it's not always going to be easy for us. It's very sad of all the violence in the world. If Adam and Eve, had...
Kristy Wilday
flowerlillie...
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Feb 4, 2009
7:55 pm

you're 100% right, it used to be that way, but something along the years went astray, it's sad. **************Great Deals on Dell Laptops. Starting at $499....
newyorkwerewolf@...
ny_werewolf
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Feb 4, 2009
7:37 pm

yes it is very sad when i was a teen or younger it was not this bad i wish it was like when i was a teen so my girls would have a better future Tessy, Destiny,...
Tessy Merino
laredogirl_2...
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Feb 4, 2009
7:40 pm

oh trust me when they stear they dont just stare they make nasty coments like im a ugly munster and i belong in a mental institution and they make does...
Tessy Merino
laredogirl_2...
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Feb 5, 2009
2:20 pm

Tessy You are a very beautiful person you have to remember that, when these disgusting and pathetic people make comments like that. These kind of people make...
Rob Grove
robgrove
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Feb 5, 2009
3:53 pm

Yes, Tessy, I agree of course, you are beautiful! I have to tell my mom that are the time. She is always telling me how ugly she is and I hate it. We are...
Kristy Wilday
flowerlillie...
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Feb 5, 2009
10:59 pm

Beauty is all about perception. Everyone has imperfections and flaws. We are conditioned to see and believe what an attractive person is according to society....
Rita
sugarrita1
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Feb 5, 2009
11:23 pm

I agree to a certain extent.......sometimes I feel really ugly because of my NF and I know that in reality I am not ugly. I believe a disorder that is...
GENEVIEVE SEYMOUR
cleo5899
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Feb 6, 2009
1:00 am

Yes, yes, yes! I agree! Have had many meltdowns myself at times. Some excrutiating "why" ones. But, I think one of the points I was trying to make was everyone...
Rita
sugarrita1
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Feb 6, 2009
3:25 am

You are correct Rita....people get upset when they have a blemish....sometimes I think....you should have to see what I have... but then we need to stop and...
GENEVIEVE SEYMOUR
cleo5899
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Feb 6, 2009
3:34 pm

Yes, I agree. But I think that we all know that we are pretty/handsome deep down, but sometimes we still feel ugly at times. I have felt that way, but for...
Kristy Wilday
flowerlillie...
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Feb 6, 2009
7:47 am

Rita, very profound!!! People don't bother to look for inner beauty, and that is a shame, you can really miss out, I have a friend who is 15 years older than...
newyorkwerewolf@...
ny_werewolf
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Feb 6, 2009
1:20 pm

thanks for u words thats what my 5 AND 7 Year old daughters tells me all the time no to listen to this people but sometimes they make my girls cry and when...
Tessy Merino
laredogirl_2...
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Feb 5, 2009
3:57 pm

Tessy, You have no reason to be sorry and every right to be angry when someone hurts your girls. Especially when it's physical. That kid that hurt your child...
Kristy Wilday
flowerlillie...
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Feb 6, 2009
8:02 am

Hi everyone, I don't think that I have posted as of yet, so I guess that makes me new to the group... My daughter has NF1 and is the only one in our family...
jordanriccar@...
nf1mimi
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Feb 6, 2009
2:19 pm

Hi Caryn, I get itchy usually around spring and then again in the fall.....lately however, I am getting itchy more often. I either take a Benadryl or use...
GENEVIEVE SEYMOUR
cleo5899
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Feb 6, 2009
3:04 pm
s_prebus
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Mar 25, 2009
7:37 am

Yes I've had the itching my whole life! I am NF2 positive and considered NF1 positive also- my nieces and I were part of a study on NF1 & NF2 at Primary...
tumorfarmer
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Mar 27, 2009
6:23 am
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