I am a female with NF and have had two children (now older) without NF.
My father has the NF gene and had five children and only two of us
inherited it. My NF symptoms did increase during pregnancy as it
usually does. Just wanted to post on this as I am sure any input is
helpful. We never know the outcome of the severity of NF as it has
often been discussed here. You have some good ideas on the alternatives
and it sounds like you are ready to make some decision. My only advice
would be to go with what you really want to do. We can't predict the
future and all have to deal with whatever we have to in life. We never
know what will happen! We all have some kind of faith I would pray for
guidance and direction. A child is a gift to us and brings much joy.
Good Luck to you and keep us posted!
>
> My fiance and I have been talking about having a baby. I have NF1
and
> know that my chances of passing it on to our child is 50%.
> We have been looking at alternative ways of having a baby from
> adoption to using a friends sperm. We're having a really hard time
> trying to figure out what is right.
> I guess what I'm wondering is, does anyone have any advice they can
> give us? We've just started talking again about harvesting some of
my
> sperm (I've had a vasectomy) but we're both aware, and afraid of the
> dangers of passing it on.
> Please, any advice or comments will be greatly appreciated.
> Thank you in advance!
> Justin and Machelle
>