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neurofibromatosis2 · A place for people with Nf to get to know others
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Reply | Forward Message #6460 of 6809 |
Re: [Neurofibromatosis] Please Help

Hi Justin
 This is hard place to be in. I have NF1. My wife & I have a son "now 30". I passed it onto him. My Dad tried talking me into not having kids. He had NF 1 & passed it onto my Brother & I. I talked to Paul our son & his wife, reminding them of the odds of passing it on. They like me, decidded to have a child "due Aprial 29. In my family from my Dad onto my son we all have or had NF.
 My brother was in & out of the hosptal most of his life, from age 6 till he passed away at 19. But I am 55 now & have alittle problms. This is something the two of you will have to decide what is best for you.
Terry

--- On Tue, 1/6/09, jwg090973 <no_reply@yahoogroups.com> wrote:
From: jwg090973 <no_reply@yahoogroups.com>
Subject: [Neurofibromatosis] Please Help
To: neurofibromatosis2@yahoogroups.com
Date: Tuesday, January 6, 2009, 12:09 AM

My fiance and I have been talking about having a baby. I have NF1 and
know that my chances of passing it on to our child is 50%.
We have been looking at alternative ways of having a baby from
adoption to using a friends sperm. We're having a really hard time
trying to figure out what is right.
I guess what I'm wondering is, does anyone have any advice they can
give us? We've just started talking again about harvesting some of my
sperm (I've had a vasectomy) but we're both aware, and afraid of the
dangers of passing it on.
Please, any advice or comments will be greatly appreciated.
Thank you in advance!
Justin and Machelle
Wed Jan 7, 2009 12:10 am

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Forward 		Message #6460 of 6809 |
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My fiance and I have been talking about having a baby. I have NF1 and know that my chances of passing it on to our child is 50%. We have been looking at... 		jwg090973
Offline 		Jan 6, 2009
11:26 pm

Hi Justin  This is hard place to be in. I have NF1. My wife & I have a son "now 30". I passed it onto him. My Dad tried talking me into not having kids. He...
Terry Long
pawpawto3
Offline Send Email 		Jan 7, 2009
9:43 pm

I am a female with NF and have had two children (now older) without NF. My father has the NF gene and had five children and only two of us inherited it. My NF...
Rita
sugarrita1
Offline Send Email 		Jan 7, 2009
9:44 pm

... and ... time ... can ... of my ... the ... My name is Melissa. I also have NF1. For the longest time I have wanted to be a mom. I am 34 and I had been dead...
Melissa
bigred410
Online Now Send Email 		Jan 7, 2009
9:45 pm

Hello all I am a 31 year old male, with NF, my dad also has NF, at the time when my parents had me, they didn't know he had NF. after having me and find out...
newyorkwerewolf@...
ny_werewolf
Offline Send Email 		Jan 7, 2009
9:57 pm

I am 36 and have NF1. I have had 4 wonderful children and only one of them has NF1. The thing is she has gone through more than i have ever. She has gone...
Nikole Benson
eleteach03
Offline Send Email 		Jan 7, 2009
10:35 pm

Thank you Nikki !!!!!! **************New year...new news. Be the first to know what is making headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026)...
newyorkwerewolf@...
ny_werewolf
Offline Send Email 		Jan 7, 2009
10:49 pm

<a href="http://www.inspire.com/inspire/group/neurofibromatosis-inc/"><img src="http://www.inspire.com/badge/neurofibromatosis-inc/b" alt="Together we're...
Nikole Benson
eleteach03
Offline Send Email 		Jan 7, 2009
10:56 pm

well i can tell u from my expariance i do have nf 2 and my first daughter has it is very mild just like me and my second daghter dosent have it with my first...
Tessy Merino
laredogirl_2...
Online Now Send Email 		Jan 9, 2009
10:22 am

- Well We have 3 Kids and our oldest got diagnosed with NF at 6 months old the other 2 have not been. Dan was diagnosed I believe at 9 years and back then they...
scneon04
Offline Send Email 		Jan 10, 2009
2:45 pm
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