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Learning abilities of NF1   Message List  
Reply | Forward Message #6380 of 6809 |
Re: Learning abilities of NF1

NF is not really a disease of the skin NF tumors grow off nerves, they
can have long roots, so lets say you have a tumor on your elbow the
nerve it could be growing off could be in your shoulder, They fould the
defected gene #17 with a electron mircoscope. anywhere a nerve is a
tumor can grow, not just on the skin. we have nerves all over the body
inside and out. It is not because of a due to toxic residues. DR
Samuels never saw anyone with NF say you said so he could only think
what he thought it could be. back before the electron micoscope von
Recklinhousen was thought of only being tumors on the skin and now they
know can grow inside also. the make-up of most tumors other the NF are
of their own ( mostly ), breast tumor, etc. but a NF tumor could also
grow in the breast and could also be cancer. Our genes are hereditary.
Thats what DNA comes from.




Tue Oct 21, 2008 3:23 pm

bombardj1
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Message #6380 of 6809 |
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Hi All, I am zubair and have NF1, it's quite severe as i have number of coffee marks (on right wrist and under left arm) and plenty of bumps (numbering in...
Zubair Aslam
zubair1979
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Oct 15, 2008
11:12 am

hi subair i like u name well i do have the same nf1 it was dignoze at age 6 and i do have learning desability and i have my masters in special education it...
Tessy Merino
laredogirl_2...
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Oct 15, 2008
2:06 pm

hi tesy, destiny, andera merino thanks for the reply and a nice inspiring story...best of luck to you and your family members your children will require...
Zubair Aslam
zubair1979
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Oct 16, 2008
5:08 am

Hi Zubair, First of all there is no cure for NF, learning disabilities are very common with NF. I have then myself, you have 1 up on me I never went to...
John
bombardj1
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Oct 18, 2008
2:01 pm

hi jhon, glyn and all glyn you are absolutely write that we should remember that there are people who are worse then our selves. and i used to concider my nf1...
Zubair Aslam
zubair1979
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Oct 20, 2008
4:01 am

I have not heard that exercises makes tumors grow more, I just don't know. I have heard that a cholesterol called lovastatin might help a little with memory,...
John
bombardj1
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Oct 20, 2008
12:14 pm

hi jhon, thanks for the reply and yes it was good...lolz... well the excersaie thing was said by millitary doctors, actually my nf1 was diagnosed when i signed...
Zubair Aslam
zubair1979
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Oct 21, 2008
4:01 am

I think the key to correcting or perhaps curing this disease is to look into the endocrine system. An imbalance between the hormones secreted by the 'system'...
comdyne2002
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Oct 21, 2008
4:23 am

hi comdyne (i do not know exact name), nice reply and pretty much technical...i do not understand the technical terms but can understand that you are a doctor...
Zubair Aslam
zubair1979
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Oct 21, 2008
4:46 am

First, NF1 there is 1 to 3000/4000. NF2 is 1 to 40000 people. if 1 person has NF there is a 50/50 chance that the child will or will not have NF, if both...
John
bombardj1
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Oct 21, 2008
5:36 am

hmmmm may be the chances of nf1 being transfered to children depends upon the severity...and i always pray that none of my children (if i have them ) have it...
Zubair Aslam
zubair1979
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Oct 21, 2008
5:40 am

Dont quote me on this and I dont know how true this is but i'm sure that they have found the faulty gene that causes NF (see email below) and also im not sure ...
Steve Parker
oosteveypoo
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Oct 21, 2008
10:25 am

http://www.genetics.com.au/pdf/factsheets/fs37.pdf Genetic testing for changes in the NF1 gene is not widely available and is currently expensive but can be...
Steve Parker
oosteveypoo
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Oct 21, 2008
10:38 am

I do not use my name on the internet. I am not a doctor but am an amateur researcher specializing in the use of moving energy in the correction of metabolic...
comdyne2002
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Oct 21, 2008
1:44 pm

NF is not really a disease of the skin NF tumors grow off nerves, they can have long roots, so lets say you have a tumor on your elbow the nerve it could be...
John
bombardj1
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Oct 21, 2008
3:23 pm

well thanks again for the reply and far a amature researcher...this is a lot...frankly spekaing it seems purely professional thanks for the explanation...
Zubair Aslam
zubair1979
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Oct 22, 2008
3:07 am

I would like to add another personal opinion; I believe that sun exposure on a daily basis of about 1/2 hour may be beneficial in curtailing this condition....
comdyne2002
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Oct 22, 2008
4:47 am

for spelling of english, thanks to spell checker...other wise i am a worst speller and i live in Pakistan...a country in south asia and when i told the...
Zubair Aslam
zubair1979
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Oct 22, 2008
5:01 am

i Zubair, About the army sitaution. Did they let you join? I was interested in joining the Ai froce but I am afraid they will not accept me b/c of my nf (they...
sunshinz25
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Nov 1, 2008
5:50 pm

hi there, well first of all soory for the late reply...it was weekend and i was in my village and no internet access there.... well i applied to join acaedmy...
Zubair Aslam
zubair1979
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Nov 3, 2008
4:39 am
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