I do not use my name on the internet. I am not a doctor but am an
amateur researcher specializing in the use of moving energy in the
correction of metabolic imbalances which are largely responsible for
most disease conditions. Diseases come from within the organism. It
is the terrain of the body, ie., its chemical balance that determines
whether or not a disease will develop. Diseases of the skin are
mostly due to toxic residues of the metabolic processes that are
unable to be adequately excreted through the digestive elimination
channels and will seek to escape the body via the skin. Few skin
conditions ever respond to topical treatments as most are systemic in
nature as Von Recklinghousen obviously is.

It is likely that this disease is hereditary. Not by reason of some
defective gene but rather weakened or less robust specific endocrine
organs which do have a tendency to characterize the offspring having
said weakness being passed on. Many experiments have been conducted
over the years that generally bears this out.

Dr. Jules Samuels died many years ago. He wrote several highly
technical books based upon his clinical experience in treating many
diseases successfully by focusing energy on the various organs of the
endocrine chain. Although he never had a patient with this particular
condition, he theorized that it would respond to endocrine balancing.

I believe him to be correct and if I had this condition, I would seek
out practitioners who practice bio-identical hormone treatments for
it is in the balance of the endocrine system where the answer to this
disease will be found. I do not recommend obtaining Dr. Samuels'
books as there is only a sentence or two regarding this particular
condition and I have already summarized the gist of it for you.


> hi comdyne (i do not know exact name),
>
> nice reply and pretty much technical...i do not understand the
technical
> terms but can understand that you are a doctor or some thing...?
>
> and for treatment the docs (dermatologists) i have met say there
is'nt any
> cure to this and nf1 happens by chance to 1 out of around
40000...may be i
> need to talk to neurologist...
>
> plus another thing about which i am concerned is that i read
somewhere if a
> person who has nf1(male/female - i am a male), there are 50%
chances that
> his/her children will have it.
>
> is it true ?
> any way as the chances can be reduced ?
>
> and you mentioned abuyt dr.sameul, he has got any website etc
> please do reply ?
>
> thanks
> zubair
>
>
>
> On Tue, Oct 21, 2008 at 9:23 AM, comdyne2002 <comdyne@...> wrote:
>
> > I think the key to correcting or perhaps curing this disease is
to
> > look into the endocrine system. An imbalance between the hormones
> > secreted by the 'system' has a profound effect upon all functions
of
> > the body organs, the skin being the largest of them all. There
are a
> > few doctors who provide testing and supplemental enzyme/hormone
> > treatments that are intended to restore normal endocrine balance
in
> > the body. I am convinced that the answer will be found by
balancing
> > the secretions of this critical body system. I do not believe that
> > infectious organisms play any major role in this disease but may
be
> > present as a result of it. I also do not believe that there is a
> > genetic condition other than weak endocrine tendencies which are
> > genetically transmitted that would make the offspring more
> > susceptible to the development of various conditions but to blame
the
> > condition solely on heredity makes a cure impossible in the minds
of
> > researchers and thus diverts their efforts to other unrelated
areas
> > of research effectively closing out any possibility of an
effective
> > treatment ever being found. Even if one believes that the disease
is
> > simply fate and thus beyond control is futile thinking and
counter-
> > productive. Dr. Samuels believed that he could cure the condition
by
> > stimulating the endocrines with high frequency diathermy.
Although he
> > never treated the condition, he was confident that it would
respond
> > as the condition was similar to other diseases that he
successfully
> > treated using said technique.
> >
> > I do not have this disease; just for the record...
> >
> >
> > --- In neurofibromatosis2@yahoogroups.com<neurofibromatosis2%
40yahoogroups.com>,
> > "Zubair Aslam"
> > <zubairaslam1979@> wrote:
> > >
> > > hi jhon,
> > >
> > > thanks for the reply and yes it was good...lolz...
> > > well the excersaie thing was said by millitary doctors,
actually my
> > nf1 was
> > > diagnosed when i signed for army. during the medical they told
> > me what
> > > nf1 was and how it can increase under extreme conditions at
> > millitary
> > > acaedmy for example they make you stand in snow fall and then
> > shower you
> > > with water and during this activity you are just wearing a
> > underwear so
> > > under these conditions my mind and body wont cooridnate properly
> > and nf1
> > > might hit me hard....
> > SNIP
> >
> >
> >
>