NF1 gene is not widely available and is currently expensive but can be helpful in some situations such as testing a baby in pregnancy for NF1 where one of the parents is affected (see Genetics Fact Sheet 17C). It is highly recommended that considerations for this testing be discussed in the context of genetic counselling (see Genetics Fact Sheet 3).
HTH (hope this helps)
To: neurofibromatosis2@yahoogroups.com From: s_c_parker@... Date: Tue, 21 Oct 2008 11:24:13 +0100 Subject: RE: [Neurofibromatosis] Re: Learning abilities of NF1
Dont quote me on this and I dont know how true this is but i'm sure that they have found the faulty gene that causes NF (see email below) and also im not sure if people can be tested for it i will search for it on the internet and see if this is true if not then may be you can do the same and let us all know or if people reading this email know already then maybe they can let us know.
To: neurofibromatosis2@yahoogroups.com From: zubairaslam1979@gmail.com Date: Tue, 21 Oct 2008 10:40:06 +0500 Subject: Re: [Neurofibromatosis] Re: Learning abilities of NF1
hmmmm may be the chances of nf1 being transfered to children depends upon the severity...and i always pray that none of my children (if i have them ) have it
First, NF1 there is 1 to 3000/4000. NF2 is 1 to 40000 people. if 1 person has NF there is a 50/50 chance that the child will or will not have NF, if both Parents have NF then the child has a 75 % chance of being born with NF. don't know much of the other writer here, people with NF1 have a defective chromosone # 17 this is a tumor surpressing gean spelling sorry. NF2 the chromosone is #22, so until they can change a persons with NF their DNA we just have to wait. just to let you know there are 8 kids in my family and I am the only one with NF.my sister said my mom have a few tumors removed when she was young she had a very mild case of it no problems with it. but I have chatted with other with NF that all their kids have it.
Hi All, I am zubair and have NF1, it's quite severe as i have number of coffee marks (on right wrist and under left arm) and plenty of bumps (numbering in...
hi subair i like u name well i do have the same nf1 it was dignoze at age 6 and i do have learning desability and i have my masters in special education it...
hi tesy, destiny, andera merino thanks for the reply and a nice inspiring story...best of luck to you and your family members your children will require...
Hi Zubair, First of all there is no cure for NF, learning disabilities are very common with NF. I have then myself, you have 1 up on me I never went to...
hi jhon, glyn and all glyn you are absolutely write that we should remember that there are people who are worse then our selves. and i used to concider my nf1...
I have not heard that exercises makes tumors grow more, I just don't know. I have heard that a cholesterol called lovastatin might help a little with memory,...
hi jhon, thanks for the reply and yes it was good...lolz... well the excersaie thing was said by millitary doctors, actually my nf1 was diagnosed when i signed...
I think the key to correcting or perhaps curing this disease is to look into the endocrine system. An imbalance between the hormones secreted by the 'system'...
hi comdyne (i do not know exact name), nice reply and pretty much technical...i do not understand the technical terms but can understand that you are a doctor...
First, NF1 there is 1 to 3000/4000. NF2 is 1 to 40000 people. if 1 person has NF there is a 50/50 chance that the child will or will not have NF, if both...
hmmmm may be the chances of nf1 being transfered to children depends upon the severity...and i always pray that none of my children (if i have them ) have it...
Dont quote me on this and I dont know how true this is but i'm sure that they have found the faulty gene that causes NF (see email below) and also im not sure ...
http://www.genetics.com.au/pdf/factsheets/fs37.pdf Genetic testing for changes in the NF1 gene is not widely available and is currently expensive but can be...
I do not use my name on the internet. I am not a doctor but am an amateur researcher specializing in the use of moving energy in the correction of metabolic...
NF is not really a disease of the skin NF tumors grow off nerves, they can have long roots, so lets say you have a tumor on your elbow the nerve it could be...
well thanks again for the reply and far a amature researcher...this is a lot...frankly spekaing it seems purely professional thanks for the explanation...
I would like to add another personal opinion; I believe that sun exposure on a daily basis of about 1/2 hour may be beneficial in curtailing this condition....
for spelling of english, thanks to spell checker...other wise i am a worst speller and i live in Pakistan...a country in south asia and when i told the...
i Zubair, About the army sitaution. Did they let you join? I was interested in joining the Ai froce but I am afraid they will not accept me b/c of my nf (they...
hi there, well first of all soory for the late reply...it was weekend and i was in my village and no internet access there.... well i applied to join acaedmy...
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