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hi subair i like u name well i do have the same nf1 it was dignoze at age 6 and i do have learning desability and i have my masters in special education it took me a little longer then a normal student but i made it. now i am working at montessori with special kids and i love it i know how it is to be descriminate just because u have a disability people are very mean anyway after i got pregnat all the small tumors start to show it got worst with my second but i would not change that for nothing i love my 2 girls i have it on my face my arms my chest and of course my back well i jsut want to tell u that anyone can do what every they want if u try u best, my 6 year old daughter has it too but rigfht now just the brown spots and a slow learning too and she was also dignoze with add and shes
been in a medicine with the patches since april and this year shes been really good at school she did repet kinder last year she really struggle but she never give up she loves to learn she has her extra back pack when we go anywhere she carries and takes her books to write color she alsways pretend shes in school and aslo she wants to be a teacher to help other kids that has learning desabilities well thats my stroy nice to meet u my name is tessy hope to heard from u soon
Tessy, Destiny, Andrea Merino
----- Original Message ----
From: Zubair Aslam <zubairaslam1979@...>
To: neurofibromatosis2@yahoogroups.com
Sent: Wednesday, October 15, 2008 6:12:49 AM
Subject: [Neurofibromatosis] Learning abilities of NF1
From: Zubair Aslam <zubairaslam1979@...>
To: neurofibromatosis2@yahoogroups.com
Sent: Wednesday, October 15, 2008 6:12:49 AM
Subject: [Neurofibromatosis] Learning abilities of NF1
Hi All,
I am zubair and have NF1, it's quite severe as i have number of coffee marks (on right wrist and under left arm) and plenty of bumps (numbering in almost 100+) on my body mostly on chest, belly and back.
It was diagnosed around 10 years ago and at that time the doctor asked me questions as how i was i in sports and studies in college and my answer was i am not good and i am below average. He then told me that told me he had guessed it by the severity of nf1 and told me that i am lucky as the stage i am at 99% of people are mentally retarded.
I do have a slow learning and a short memory (e.g. at times i forget if i have brushed my teeth or not or where i placed my shoes and i alos forget spellings etc etc) and i take a lot of time to understand things, so the question is is there any cure to this ? I know that has no treatment but is there some thing like improving learning abilities.
I do have a 4 year BS degree in computers and the i am in a good organization and earning good, but to reach this place it took me a lot of time and plenty of efforts. Countless nights and days without sleep of 6 years were spent to get a degree which people complete in 4 years and then for my post graduate degree i was expelled beacuse of poor gardes.
At job i am good but to develop the skills required for my job i had to put up a lot of effort, some times it was like for 7-8 weeks i used to be at work without a day off.
In a way nf1 has helped me as it has given lesson which is that hard work can do any thing but the question is that is there a way things can be improved ? i mean how the effort and time spent can be used to achieve some thing bigger.
thanks
zubair
I am zubair and have NF1, it's quite severe as i have number of coffee marks (on right wrist and under left arm) and plenty of bumps (numbering in almost 100+) on my body mostly on chest, belly and back.
It was diagnosed around 10 years ago and at that time the doctor asked me questions as how i was i in sports and studies in college and my answer was i am not good and i am below average. He then told me that told me he had guessed it by the severity of nf1 and told me that i am lucky as the stage i am at 99% of people are mentally retarded.
I do have a slow learning and a short memory (e.g. at times i forget if i have brushed my teeth or not or where i placed my shoes and i alos forget spellings etc etc) and i take a lot of time to understand things, so the question is is there any cure to this ? I know that has no treatment but is there some thing like improving learning abilities.
I do have a 4 year BS degree in computers and the i am in a good organization and earning good, but to reach this place it took me a lot of time and plenty of efforts. Countless nights and days without sleep of 6 years were spent to get a degree which people complete in 4 years and then for my post graduate degree i was expelled beacuse of poor gardes.
At job i am good but to develop the skills required for my job i had to put up a lot of effort, some times it was like for 7-8 weeks i used to be at work without a day off.
In a way nf1 has helped me as it has given lesson which is that hard work can do any thing but the question is that is there a way things can be improved ? i mean how the effort and time spent can be used to achieve some thing bigger.
thanks
zubair
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