Hi All,
I am zubair and have NF1, it's quite severe as i have number of coffee marks (on right wrist and under left arm) and plenty of bumps (numbering in almost 100+) on my body mostly on chest, belly and back.
It was diagnosed around 10 years ago and at that time the doctor asked me questions as how i was i in sports and studies in college and my answer was i am not good and i am below average. He then told me that told me he had guessed it by the severity of nf1 and told me that i am lucky as the stage i am at 99% of people are mentally retarded.
I do have a slow learning and a short memory (e.g. at times i forget if i have brushed my teeth or not or where i placed my shoes and i alos forget spellings etc etc) and i take a lot of time to understand things, so the question is is there any cure to this ? I know that has no treatment but is there some thing like improving learning abilities.
I do have a 4 year BS degree in computers and the i am in a good organization and earning good, but to reach this place it took me a lot of time and plenty of efforts. Countless nights and days without sleep of 6 years were spent to get a degree which people complete in 4 years and then for my post graduate degree i was expelled beacuse of poor gardes.
At job i am good but to develop the skills required for my job i had to put up a lot of effort, some times it was like for 7-8 weeks i used to be at work without a day off.
In a way nf1 has helped me as it has given lesson which is that hard work can do any thing but the question is that is there a way things can be improved ? i mean how the effort and time spent can be used to achieve some thing bigger.
thanks
zubair
I am zubair and have NF1, it's quite severe as i have number of coffee marks (on right wrist and under left arm) and plenty of bumps (numbering in almost 100+) on my body mostly on chest, belly and back.
It was diagnosed around 10 years ago and at that time the doctor asked me questions as how i was i in sports and studies in college and my answer was i am not good and i am below average. He then told me that told me he had guessed it by the severity of nf1 and told me that i am lucky as the stage i am at 99% of people are mentally retarded.
I do have a slow learning and a short memory (e.g. at times i forget if i have brushed my teeth or not or where i placed my shoes and i alos forget spellings etc etc) and i take a lot of time to understand things, so the question is is there any cure to this ? I know that has no treatment but is there some thing like improving learning abilities.
I do have a 4 year BS degree in computers and the i am in a good organization and earning good, but to reach this place it took me a lot of time and plenty of efforts. Countless nights and days without sleep of 6 years were spent to get a degree which people complete in 4 years and then for my post graduate degree i was expelled beacuse of poor gardes.
At job i am good but to develop the skills required for my job i had to put up a lot of effort, some times it was like for 7-8 weeks i used to be at work without a day off.
In a way nf1 has helped me as it has given lesson which is that hard work can do any thing but the question is that is there a way things can be improved ? i mean how the effort and time spent can be used to achieve some thing bigger.
thanks
zubair