From: tracey441976 <traceyrobertson01@...>
Subject: [Neurofibromatosis] Re: loss of feeling
To: neurofibromatosis2@yahoogroups.com
Date: Wednesday, September 10, 2008, 3:09 AM

Hi

I have numbness mainly in the 3 centre toes of my right foot, best way
to describe it is as if I am wearing shoes that are too tight and my
toes have been squashed. I also get this feeling of numbness elsewhere.
The numbness in my toes Ive had now for about 7 weeks but it is 24/7

I havent heard of MS being a problem in people with NF1 but there is a
condition called PERIPHERAL NEUROPATHY
http://www.ninds. nih.gov/disorder s/peripheralneur opathy/periphera lneurop
athy.htm . If you click on this link
http://www.neurocen tre.com/slanss. php there is a short qustionaire type
test to take which can suggest wether you are likely to have peripheral
neuropathy .

I am at present waiting to see a neurologist regarding this

Hope this info is of some help

Tracey

--- In neurofibromatosis2@ yahoogroups. com, "truconfusion"
<truconfusion@ ...> wrote:
>
> i have nf 1 and have noticed that the numbness and loss of feeling is
> getting worse and the feeling is starting not to return...does anyone
> else have this problem?
>