Attn: man Reiklinghausen sufferers: Although I don't have this disease
I have an interest in it because I read a book by a doctor who
claimed to treat it effectively. Based upon the technical detail and
descriptions that he offered, I was left with the impression that the
man was a genius. His approach was to use focused radio energy fields
to attack the tumors which he felt were caused by some pathogenic
agent that could be destroyed with the heat generated by a diathermy
machine. He did not focus the energy upon the tumors, however, he
concentrated on the organs of the endocrine system that exacerbated
the proliferation of the organisms that allowed the tumors to form
initially. I have some ideas as to how to treat this condition that I
am sure none of you have thought of. When I posted my initial info, I
never received an email reflecting my post so I figured that the info
I provided was too obscure or perhaps threatening for your moderator
to post. I think that was foolish. So I offer my opinion as to a
potential answer and if I see no response, once again, I apologize
for offering you my humble opinion. I don't have the disease so I
don't really care how my efforts are welcomed.

If this is posted and modified in any way, I shall remove myself from
this group and my discovery shall remain my intellectual property.

--- In neurofibromatosis2@ yahoogroups. com, sunshinz25 <no_reply@.. .>
wrote:
>
> Thankyou so much for your response.I heard if i get a plastic
> surgeon to do the job he will lave smaller scars.I am just curious,
> did you use a plastic surgeon? This Dr that i have used in the
> past leaves a scar on some of the ones's he removed. My parents
> found him. I am just wondering the doctor that performed your
> surgery...how did you find him? Did you ask first about his
> knowledge of NF? Sorry to boggle you with all these questions. I
> hope your 4th of July goes well. Thank you take care.--- In
> neurofibromatosis2@ yahoogroups. com, Nikole Benson <eleteach03@ >
> wrote:
> >
> > I have had a tumor removed from just above my right eye brow and
i
> was afraid it would leave a nasty scar but my surgeon did an
awesome
> job at how he did it. You can not even see where it is. Talk to
the
> surgeon and tell him your worries. I am sure he will do what he can
> to make the scar less noticable. Email me any time i would be happy
> to talk to you.
> > Nikki Benson
> >
> > sunshinz25 <no_reply@yahoogroup s.com> wrote:
> > Hello everyone,
> > This is my second post. I have not been here in a while. I have
> > NF. I have both the birthmarks and knots (tumors). It seems with
> > age they get WORSE. In 1999 i had 6 or more removed. They
actually
> > did good, not that much scarring. so not very many worries. The
> > upcoming surgery is why i am afraid. In 2005 i noticed a small
pea
> > size knot under my right eye just above my check bone. My biggst
> > fear is that the Dr will cut too deep and leave a big scar on my
> > face. My sister said have a plastic surgeon to go in and stich me
> > up (in addition to the general surgeon) performing the surgery.
> She
> > said b/c the plastic surgeon will stitch where there are not very
> > many scars. has anyone got one of their face removed? My sister
> has
> > one on her eye and they have yet to remove hers. I will post
> > pictures of my before and after surgery (only briefly) i don't
> like
> > posting pictures. I am sure you all understand. I am so nervous
> > b/c i know this is not a "cosmetic procedure" insurance will pay,
> I
> > am only concerned with the scars they may leave. Can anyone share
> > with me the technique (if any) their surgeon used to reduce
> scarring
> > on the face?
> > Also, i believe it was here that i read there is something you
can
> > take (treatment) to reduce the growth of any new tumors or stunt
> the
> > growth of exisiting ones. Is this true b/c i have never heard of
> > this treatment. Soryy for the long post.
> > If anyone wants to talk drop me a line and we can. Good luck to
> > everyone.
> >
>