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neurofibromatosis2 · A place for people with Nf to get to know others
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hello there!!   Message List  
Reply | Forward Message #6342 of 6809 |
Re: [Neurofibromatosis] hello there!!

welcome! My name is Sherrie(41yr). I have NF1 and was diagnosed when I was 6mo old. I have all the cafe au lait spots and several subcutaneous bumps (they look like mosquito bites). I have an 8yr old daughter also has NF1 and she was diagnosed at 4mo old. She has several cafe au lait spots, and had brain surgery Sept 2006 to remove a begnign tumor onher hypothalmus gland. We live in FL

--- On Sun, 6/29/08, Meredith <mere_101@...> wrote:
From: Meredith <mere_101@...>
Subject: [Neurofibromatosis] hello there!!
To: neurofibromatosis2@yahoogroups.com
Date: Sunday, June 29, 2008, 11:47 PM

Hi, my name is Meredith, and I am 24 with NF1. I have just started to
get my "bumps", and its getting a little strange when I find
something
new on my body. I have a 2 yr old daughter, not sure yet if she has
NF. Well I just wanted to introduce myself, so I hope you all are
well, hope to talk to you soon!!
Meredith ------------------------------------
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Mon Jun 30, 2008 1:35 pm

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sherriebaby65
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Forward 		Message #6342 of 6809 |
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Hi, my name is Meredith, and I am 24 with NF1. I have just started to get my "bumps", and its getting a little strange when I find something new on my body. I... 		Meredith
mere_101
Offline Send Email 		Jun 30, 2008
3:48 am

welcome! My name is Sherrie(41yr). I have NF1 and was diagnosed when I was 6mo old. I have all the cafe au lait spots and several subcutaneous bumps (they look...
Sherrie in Florida
sherriebaby65
Offline Send Email 		Jun 30, 2008
1:35 pm

Here is some info I extracted from an old medical book. This doctor was a specialist in treating hormonal imbalances using a diathermy machine. ... The two...
comdyne2002
Offline Send Email 		Jun 30, 2008
2:57 pm

Welcome. I am Nikki and i am 35 with NF. I have four kids and only one so far has it. She has gone through chemo for a Optic Glioma. Email me any time. Nikki ...
Nikole Benson
eleteach03
Offline Send Email 		Jun 30, 2008
6:00 pm

I havent been in for a check up in about....12 years.  I should probably go in.  To be very honest, I live a happy healthy lifestyle, and 3/4's of the time,...
Meredith L
mere_101
Offline Send Email 		Jun 30, 2008
7:32 pm
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