I go in about once a year to have fibromas removed by laser surgery.
It is called co2 Laser. Have had some removed on the face this way
and it was successful with only leaving a light scar. I do have a
couple pock marks left also those areas did not heal as well. Laser
can be done awake or asleep where many more growths can be removed.
I am planning on seeing a plastic surgeon soon to see about having
some removed from the face before they become larger or be a
problem. That is really the only options to have them removed...is
to see a plastic surgeon or dermatologist. I wouldn't worry about
what people say or think. There are so many diseases and disorders
that people have and are walking around with....and have things wrong
with their appaerance. It is much worse in our own eyes than
others. Next time a person makes you feel uncomfortable, explain it
to them.
>
> hello everyone i also have NF1 and all my back is full of those
things and in my neck too i have some in my face i would like to ask
if anyone knows how can i clear my face people judge me for the way i
look and that makes me up set thank you here is a little bet about me
I'm tessy single mom of 2 girls 6 and 4 we live in south TX my 6 year
old has NF1 also but she only has the brown spots thanks everyone
>
> Tessy, Destiny, Andrea Merino
>
>
>
> ----- Original Message ----
> From: leoenwilna <leoenwilna@...>
> To: neurofibromatosis2@yahoogroups.com
> Sent: Tuesday, May 6, 2008 9:13:08 AM
> Subject: [Neurofibromatosis] Re: Debra Duncan Show - "Reggie Bibbs
& Neurofibromatosis"
>
>
> Hi José,
>
> We just saw the show and liked it very much. Wilna, my wife, also
has
> NF1 and all the sympthoms are very alike. She has about 500 growths
> only on her back.
> If my English is not correct, sorry, I'm Dutch.
>
> Leo, Arnhem, the Netherlands.
>