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hello everyone i also have NF1 and all my back is full of those things and in my neck too i have some in my face i would like to ask if anyone knows how can i clear my face people judge me for the way i look and that makes me up set thank you here is a little bet about me I'm tessy single mom of 2 girls 6 and 4 we live in south TX my 6 year old has NF1 also but she only has the brown spots thanks everyone
Tessy, Destiny, Andrea Merino
----- Original Message ----
From: leoenwilna <leoenwilna@...>
To: neurofibromatosis2@yahoogroups.com
Sent: Tuesday, May 6, 2008 9:13:08 AM
Subject: [Neurofibromatosis] Re: Debra Duncan Show - "Reggie Bibbs & Neurofibromatosis"
From: leoenwilna <leoenwilna@...>
To: neurofibromatosis2@yahoogroups.com
Sent: Tuesday, May 6, 2008 9:13:08 AM
Subject: [Neurofibromatosis] Re: Debra Duncan Show - "Reggie Bibbs & Neurofibromatosis"
Hi José,
We just saw the show and liked it very much. Wilna, my wife, also has
NF1 and all the sympthoms are very alike. She has about 500 growths
only on her back.
If my English is not correct, sorry, I'm Dutch.
Leo, Arnhem, the Netherlands.
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