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Hi, My name is Nikki and i have four children. Me and my 7yr old daughter have NF1. I have known since about 4yrs old and my daughter i have known since she was six months. She and I both have the Cafe Au Lait spots and tumors. I have had many surgeries.
My daughter on the other hand has gone through chemotherapy for a Optic Glioma and we are stopping the chemo to see what happens. We go tomorrow to see the oncologist to see what the plan is. She has lost all color in the eye that the tumor is plus a lot of vision. She can see pretty well with her other eye.
You can email me as well anytime you like. eleteach03@...
Nikki Benson
Tessy <laredogirl_20006@...> wrote:
Tessy <laredogirl_20006@...> wrote:
hi my name is tessy im new here im a divorce mom with 2 girls one is 6
and my baby is 4, my 6 year old and me we have neurofribromatosis and
i had learn to live with it is not been easy becasue when people see
me they judge me for the way my face is to my dauhgter u cannot tell
she has it yet anyway i joing here because i want to meet other people
with the same thiing and may be learn more about it i been divorce 3
years we live in south tx in laredo by the border of mexico well if
anyone wants to be my friend feel free to email me at
laredogirl_20006@yahoo.com hope to meet everyone here soon.
tessy merino
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