Hello,

My name is Troy. I have NF2. People look at me strangely  because of my face also. I found out about my desease in 1988 when my left eye was hurting so much that it was hard to open the eye lid. I was having sharp pains and then they would stop and then start again.

I had alot of tests from here in Sonora on through to S.F. Ca. I was in a waiting room after hours to see this Dr. The door to the hallway was open, when an older man walked bye and saw me. He asked the Dr. what my problem was and the Dr. told him that they could not fine the answer. After a small conversation, the man walked in and got a small peice of typing paper and laid it on my fore-arm and waited. In a short time, the paper started to dance---on my arm, it started to dance or move around. It was amazing, I have never seen anything like that, It was so bizzar. The man said to the Dr., That boy has NF- You look and see, you will find that boy has NF. The Dr. said that I didn't have calfolay spots and other things and the man said Idon't care what he dosen't have, He has NF. I don't remember the mans name, but he sure saved me from alot more tests.:) My face has lost alot of nurves on the left side, so it drupes, but I also have alot of tumors. I had a very large one removed in 2002 on my cheak bone. It was so large that I could not see my left ear in the mirror, even if I turned my head, I still could not see my ear. My face got back to normal when I had the surgery, but it has grown some, but it is still easy to work with.

I am afraid that I have to go now. I need to go to bible study. It was nice writting to you. I usualydon't type much because I am not very good, but I had afew minutes. :)

Take care of you and your daughters,

Troy

Tessy <laredogirl_20006@...> wrote: