My daughter has NF1 and has an Optic Glioma that they are treating with
Chemotherapy. She is only 7yrs old and is doing alright. She has lost a
pretty descent amount of vision in the eye that has the tumor. We are
also going to Shriners Hospital this month for her ankles and legs. She
wears braces on her ankles to support her legs but they are going to
have to go farther up her legs to support them. I will let you all know
what happens later. My daughter also has a carepage set up, if anyone
wants to visit it let me know your email and i can invite you. TY Nikki