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neurofibromatosis2 · A place for people with Nf to get to know others
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Reply | Forward Message #6164 of 6809 |
Re: [Neurofibromatosis] Need prayer request

Sherrie,
My heart goes out to you!
I also suffer from migraines, tho I do not have NF, my daughter does tho, and she has terrible migraines...they prescribed Topomax for her and she is doing much better!
Ask your doctor for this, can also help with neuropathy (nerve pain, which i s common in NF patients).
My Prayers Go Out to All NF Sufferers!
Pam

Sherrie in Florida <Sherriebaby65@...> wrote:
Hello everyone
 
I have NF1 and have been "in remission" since 1987. Well I have been having migraine like headaches for over 2 weeks. Regular stuff like Tylenol is not working. I go for a MRI Wednesday morning to see if there is anything cropping up. Pray all will be ok
 
Sherrie
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Tue Sep 25, 2007 1:55 am

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valkkyrrie
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Forward 		Message #6164 of 6809 |
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Hello- Is there a way to do something about the spam in the group? Its a bad thing when you're at your lunchour at work and get fooled into opening something... 		skywarn96
Offline 		Nov 11, 2003
12:59 am

Hello everyone, l hope you are all well. I am extremely sorry for the all the spam and the members who are joining purely to put this spam on. As soon as l...
brian_robert_williamson
brian_robert...
Offline 		Apr 20, 2007
9:25 pm

Thank you Brian!! I myself get discouraged and have contemplated many times taking this group off of my list.. but i hesitate to do so because of the...
Tara Hendrickson
trobe09
Offline Send Email 		Apr 22, 2007
4:46 am

Just one question though about joining how does this invitation stuff work as i dont know ? and how do the genuine people get the invite in the first place and...
Steve Parker
oosteveypoo
Offline Send Email 		Apr 22, 2007
9:55 am
LISA BOLE
aunntylisaann
Offline Send Email 		Apr 24, 2007
8:08 pm

... THIS CHAT ROOM DO TO MY HEATH DOSE NOT BEEN I DO HOPE YOU LET ME TO BE APART OF THIS GOUP TOO . FOR ME TO KNOW THAT THERE ARE OTHERS OUT THERE THAT I CAN...
LISA BOLE
aunntylisaann
Offline Send Email 		Apr 24, 2007
8:15 pm

Hello everyone, l hope you are all well and having a good time. Since changing this group from a public to a private group whereby you need me to approve your...
brian_robert_williamson
brian_robert...
Offline 		Sep 21, 2007
8:50 pm

Hello everyone I have NF1 and have been "in remission" since 1987. Well I have been having migraine like headaches for over 2 weeks. Regular stuff like Tylenol...
Sherrie in Florida
sherriebaby65
Offline Send Email 		Sep 24, 2007
10:09 pm

I will definitely pray for you. Hope everything works out. Nikki Benson Sherrie in Florida <Sherriebaby65@...> wrote: Hello everyone I have NF1 and have...
Nikole Benson
eleteach03
Offline Send Email 		Sep 24, 2007
11:14 pm

we also will be praying...... ... ____________________________________________________________________________________ Check out the hottest 2008 models today...
Marty Shouse
shousebl
Offline Send Email 		Sep 25, 2007
11:55 am

MRI was rescheduled to Saturday afternoon. They had some maintenance on the maget part of the MRI machine to do Wednesday. I just wish these headaches would go...
Sherrie in Florida
sherriebaby65
Offline Send Email 		Sep 27, 2007
10:23 pm

Sherrie mom and me will be praying for you ************************************** See what's new at http://www.aol.com...
newyorkwerewolf@...
ny_werewolf
Offline Send Email 		Sep 25, 2007
12:55 pm

Sherrie, My heart goes out to you! I also suffer from migraines, tho I do not have NF, my daughter does tho, and she has terrible migraines...they prescribed...
Pam Frease
valkkyrrie
Online Now Send Email 		Sep 25, 2007
1:55 am

I will keep you in my prayers. Please let us know when you get a chance. I will be thinking of you. Its hard when things that may seem "not too unordinary" in...
Anne
mummyathome
Offline Send Email 		Sep 25, 2007
2:12 am

wish you all the luck in the world! i shall pray =) --Rebecca ... ____________________________________________________________________________________ Be a...
... ...
luckycloverg...
Offline Send Email 		Sep 25, 2007
4:51 am

Quoting "... ..." <luckyclovergal07@...>: dear sherrie my prary willl be with you always remember that god has you in his hand we was told that we had...
lbole@...
aunntylisaann
Offline Send Email 		Nov 7, 2007
4:03 pm

Sherrie, My prayers are with you...my daughter has NF and has been suffering from migraines, her doctor put her on Topomax, which is a seizure med, that works...
Pam Frease
valkkyrrie
Online Now Send Email 		Nov 7, 2007
5:20 pm

i go see the neurologist Nov 13. Right now I am on Tylenol 3. My mom had shoulder surg recently and gave me the rest of her Darvacet. I will ask about Topamax....
Sherrie in Florida
sherriebaby65
Offline Send Email 		Nov 8, 2007
1:10 am

... sherrie i will pray for you ... ____________________________________________________________________________________ Shape Yahoo! in your own image. Join...
SCOTT JARMON
bamafan_899
Offline Send Email 		Sep 25, 2007
7:43 pm
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