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neurofibromatosis2 · A place for people with Nf to get to know others
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DR's visit update   Message List  
Reply | Forward Message #6122 of 6809 |
Re:DR's visit update

I do as well.  I have had several surgerys to remove them and part of my spine is fused together because it was so weak,  i sure I will have to have another one soon, if I can find a good Dr.
 
Jennifer

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Sat Jun 2, 2007 9:30 pm

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candlewoman13
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Forward 		Message #6122 of 6809 |
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Hi All, I don't think DR's know what they are doing most of the time. The tumor they have been talking about is the one that is in my right eye socket, so... 		John
bombardj1
Offline Send Email 		May 31, 2007
10:45 am

Hi, I have written only once before. Does anyone else have a tumor (schwannoma or neurofibroma) inside their spine, either next to or within the spinal ...
bill8sf@...
yp_bill_san_...
Online Now Send Email 		May 31, 2007
6:04 pm

Yes I have I had 2/3's of it removed in 2001 and now have an mri scan yearly to make sure it does not regrow bill8sf@... wrote: Hi, I have...
Mel Gilbert
doughnutbabeuk
Offline Send Email 		May 31, 2007
6:41 pm

I have to go to the genetic dr in a month to see if i have one. They are saying my spinal canal is widening and i have to go and see the dr to find out what is...
Nikole Benson
eleteach03
Offline Send Email 		May 31, 2007
7:45 pm

I agree I have the hardest time finding a Dr even the specialist. I am always getting referred to another Dr. It is very time consuming and hard to cope with,...
Jennifer Andrade
candlewoman13
Offline Send Email 		Jun 1, 2007
1:28 am

I do as well. I have had several surgerys to remove them and part of my spine is fused together because it was so weak, i sure I will have to have another...
Jennifer Andrade
candlewoman13
Offline Send Email 		Jun 2, 2007
9:33 pm
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