Hi Jen
I have Optic Giloma Mine are on the Iris of my eye No internal
as far as I Know I had MRI of head a few years ago and nothing was
there ......Ok Laugh Mrs asked Not even Grey matter???? She picks.
I too am result of Spontainius Mutation , that is the genetic term
for it when cconception mutates NF1 the best place for infor is
www.ctf.org this is the national site and has about the best
information, you can write me 2 kim_mepa@... and my yahoo id is
kim_mepa if you want to write Me on Instant messenger, Hope this
helps Kim Oh I am a man 50 . I live in W Pa