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neurofibromatosis2 · A place for people with Nf to get to know others
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Oral Neurofibroma   Message List  
Reply | Forward Message #5967 of 6809 |
Hi everyone.... I am new to this group and have a few questions.
I had a neurofibroma removed from the hard palate in my mouth. My oral
surgeon told me the pathology was "interesting" and sent me on my way.
He said the tumor may "come back".

I haven't been diagnosed with neurofibromatosis however, I read online
20-60% of cases start with a single oral tumor.

Need advice.... Should I get a neurology or genetic testing done?
Should I just let it go and watch it?

I am so confused and worried too.

Appreciate any advice or info.... Thanks all!




Wed Feb 14, 2007 1:44 am

tracys_911
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Message #5967 of 6809 |
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Hi everyone.... I am new to this group and have a few questions. I had a neurofibroma removed from the hard palate in my mouth. My oral surgeon told me the...
tracys_911
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Feb 14, 2007
1:49 am

Welcome to Our Family...FirstI would do a little research. There are 3 things that are associated with NF 6 Cafe-Au-la spots 3/4 " or bigger Nuromas ..aka...
kim_mepa
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Feb 14, 2007
1:52 pm
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