I am a single mom of four. Myself and my six year old daughter have
NF-1. I have had several fibromas removed. My daughter, we just found
out has swelling behind her one eye with numerous other things wrong
with it. She has only 20/80 vision right now. They took pictures of
her eyes and we go down to Grand Rapids Michigan for an MRI tomorrow.
They are telling me Chemotherapy may be our only way of treating this.
Any one have any experience with this let me know what you found out.
I also have three other children, i have a 10 yr old, she has adhd, an
8yr old with autism and a 5 year old who is all boy. Nikole Benson