Kim,

Is the tumor painful? that sounds like it would really hinder your
arm function. ouch! my dad has also noticed that his NF seems to
worsen with age... I have heard that before from other ppl too...

wish they could find a way to slow it or prevent it from worsening.

maybe some day, huh?

take care,

Nora
--- In neurofibromatosis2@yahoogroups.com, kim_mepa <no_reply@...> wrote:
>
> Greetings
> Im a 49 Year old male I have a very large Plexiform on My
> righ arm It is 3" wide and runs 3" on either side of my elbow . Drs
> have been reluctant to remove it because of its size and that this
> one may return. Being on you Girls face its best to have it removed,
> A Plexeform is a large Mass of Fibroma's and is mostly rare. I have
> had a small tumor removed from it and everything is ok with so far. I
> also have many bumps all over my body. I get more as i get older for
> some reason .If you would like to see a pitcure of Me you can on my
> Profile http://profiles.yahoo.com/kim_mepa. You can E-Mail me at
> kim_mepa@... I do hope this helps .
> Kim
>