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Re: [Neurofibromatosis] Swim wear   Message List  
Reply | Forward Message #5114 of 6809 |
Re: [Neurofibromatosis] Swim wear

You have a great attitude carolinacpnter,
I have always been depressed. I blame it on my NF. Can anyone, all of you who love
yourselves please tell me how to go about learning to love myself.........I am married to
a wonderful man who couldn't care less about my NF...he accepts it better than I do.
I am 47 and getting worse.....they are all small but they are growing in numbers...
I am starting to get them on my face........The doctors also think I have Rheumatoid
Arthritis....so I will be even more deformed.....I have a heart condition and I also had
pseudoarthrosis in my right tibia as a child.....the wrath of NF has been with me from
the time I was a baby........I need to learn how to accept it and love myself........
HELP ME..........
 
 
----- Original Message -----
Sent: Wednesday, November 09, 2005 9:01 PM
Subject: Re: [Neurofibromatosis] Swim wear

hi    PAUL    i  to  have  NF1   have  lots  of  the  bumps on  chest  back  ect   but  im  to  the point i  dont  care  if  it will bother some one or  not  i  am  a  MAN to   and  if  some  one  dont  like the  way i  look  screw him/her  all of  us with  NF   dont   and  should  not  put  up with what  the rest of the  world   sees fit as  perfect  lil  bodies 


Thu Nov 10, 2005 3:01 am

cleo5899
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Message #5114 of 6809 |
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Hi Paul, How about swimming trunks and a tee shirt.... Jenny ... From: polarman47 To: neurofibromatosis2@yahoogroups.com Sent: Wednesday, November 09, 2005...
Genevieve Seymour
cleo5899
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Nov 10, 2005
12:24 am

hi PAUL i to have NF1 have lots of the bumps on chest back ect but im to the point i dont care if it will bother some one or not i...
carolinacpnter@...
photoguybill
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Nov 10, 2005
2:01 am

You have a great attitude carolinacpnter, I have always been depressed. I blame it on my NF. Can anyone, all of you who love yourselves please tell me how to...
Genevieve Seymour
cleo5899
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Nov 10, 2005
3:01 am

... I think we ALL get depressed about having this disorder. Some days are worse than others....some real bad, some very good. We have to remember to look...
Rita
sugarrita1
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Nov 11, 2005
12:40 am

I too, have lots of little bumps on my back and torso, and hardly any external ones anywhere else. not sure why that is... I worry about it more too, I think,...
littlenloud
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Nov 12, 2005
3:28 am
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