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Hi Chelle,
Michelle my daughter had a Thyroid Storm that killed her.. I miss her so much... She was to young to leave us.... I will pray for you and your daughter... Do you have NF 1 or 2??? Some of my family have 2 and some have 1... Myself I have 1...
I know how hard it is when your child has NF and you have to see the changes in their body and the things they have to deal with...
I hope to hear from you soon
Debi
----- Original Message -----From: ChelleSent: Thursday, October 06, 2005 1:24 PMSubject: Re: [Neurofibromatosis] New member from the Dallas Tx area...........Hello allWell hello Debi and thank you for the warm welcome. My daughter is 9,
I am 33. When I was younger I had a little sister that they believed
probably had NF. My mom said something about her having tumors all
through out her little body. I just remember her being really sick,
and my mom always taking her and they would go to San Francisco to the
neurologists there. As far as we can tell the main thing my daugher
actually has going on is a slight learning disability, but not really
even so. She was slow to develope speech and being able to walk when
she was a baby. I had an acoustic neuroma, leaving me totally deaf in
my left ear, and so far that is all I know. If you don't mind me
asking Debi, did your daughter pass from the NF? I will be honest,
lately the way I have been feeling, I am truly scared about my future,
but still haging in there from day to day. Hope to get to talk to you
soon.
Chelle in Dallas
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