My 9 year old son has been diagnosed with NF1/bow tibia since the age
of 4 months. At that time we were told by doctors that there was a 50%
chance that his leg may need to be amputated.He has been wearing a
full leg brace since then.

A few months ago the doctors said he no longer required to wear a
brace. This is totally unexpected as two of his friends with the same
conditions alreday have their legs amputated.

Does anyone know knows of similar case/s that the leg brace was
removed after a period of time?