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Hi Dan,
My name is Mary I have NF1. I am married and have two sons.I have had two surguery do to my NF1. In the one I lost my stomke and all of it to the tumor I had. It was a big tumor. It as ten pounds in size.Do you know that they have a NF caht room? I go into the room all the time. I am know as babygirl in the room.We have a lot in fun in the room.I have made so many from in the room.
I am from Mississippi. Or I will soon be in mississippi, we are moveing in the next week. Will i got more packing to do so I will let you go for now.
Mary
Dan Latham <drlatham@...> wrote:
Dan Latham <drlatham@...> wrote:
My aunt had NF and died in 1990 at the age of 42. At first, she was
diagnosed with breast cancer at age 40, had a double mastectomy, but I guess
that wasn't enough. The following year they found a malignant tumor in her
brain and she died seven months later. The doctors didn't say that the
original breast cancer or the brain tumors were related to NF, but I imagine
that having NF does increase the risks.
I do not have NF, but by an odd coincidence, my wife does. We're both 35
right now, and we live in Japan (which means I have a tough time talking to
local doctors). I am concerned about my wife's health, particularly the
risk of breast cancer.
Does anyone know about this? And how often should my wife get herself
tested (mamogram... or other tests)?
Thanks,
Dan
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