Hey, I was wondering if you could call the school and arrange to have
the teacher visit your home and talk with you about your daughter? It
sounds like she is bored or frusterated with her school work, and not
letting her play is the worst thing they could do. IF she already has
trouble concentrating and sitting still, then she'll jsut get more
frusterated and upset if she is unable to get rid of all her pent up
energy.

Can you rent a wheelchair or a van with a ramp? The insurance should
have taken care of that ages ago. I suggest getting an accident
lawyer if it is not taken care of soon, or telling the insurance
company that you plan to do so. YOu can also go after them for the
time you were without transportation and inconvenienced. Try calling
a lawyer and seeing if they'll help you. You definately have a case!

Hope your mom does well -- hopefully the tumors are NF related tumors
and nothing serious. I'm sorry that so much seems to keep happening
to you! I hope it gets better for you soon.

Nora

--- In neurofibromatosis2@yahoogroups.com, "bea" <mom2nfautism@c...>
wrote:
>
> I am just needing a ear to lean on right now. As I posted in early
> threads, my grandmother passed away in Oct. 2004 with Colon Cancer,
> My dad was in the hospital early Feb. 2005 with a blood clot, but is
> now fine.,On Feb. 14, I had my car accident which destoryed my
> wheelchair, wheelchair lift, and left gas peddle. still have not got
> anything replaced., One Feb. 15, my uncle died(he had NF1 also).
> Yesterday 3-9-05 my mom had a colonozopy (sorry on spelling) and
they
> removed 4 polops and found a tumor in the mouth of her colon that
> they say needs to be removed by an operation,( She has NF1 and we do
> not know if it is a NF tumor or not) they did an EKG last night and
> they found something wrong with it, so enstead of the operation
today
> they did an angeogram to her heart and THANK GOD the doctor said she
> has a perfect heart. He said "he wished he could change hearts with
> her, hers was in such good shape." He was the Cardologist. So now we
> are wating to see when they are going to do the operation. It may be
> tomarrow or it may be in two weeks. We don't know yet. I have no
car,
> I am having to depend on a friend to take the girls back and forth
to
> school, they are testing this week so I can't tell them about their
> grandma, I have to hide my emotions when they are around when all I
> want to do is scream and cry. I have to depend on people taking me
to
> the hospital to see her and bringing me home before the girls get
> home.
>
> Sorry this is so long, I'm just needing to talk to someone.
>
> I found out that my 8 year old is spending either part of her recess
> or all of her recess most days on the line (time out for misbehavior
> during school day) or (not doing work etc.) when her OT and PT think
> she needs to run and play the whole time. I can't get to the school,
> I can't see what is going on or talk with the teachers on either
> child. It is 4 weeks this week since my wreck and I feel I am going
> crazy. The head person at the other guys insurance told my dad that
> he thought this was taken care of and we said no it not, and he said
> that he wanted us to call the place we have and no matter the cost
> they would replace it. that this was not just about replacing a car
> it was about my lifestyle and getting me back to the level of
freedom
> and independance I had before the wreck. So now we are still wating.
> I hope my the end of March I have a car and lift and wheelchair
> again. I am going crazy. It will be a moth Monday the 14th.
>
> Thanks for leting me vent.
>
>
> __________________
> Bea (mom to daughter age 10 who has Neurofibromatosis, Autism, ADHD,
> Sensory Intergration, Asthma)(mom to daughter age 8 who has
> Neurofibromatosis, Autism, ADHD, Sensory Intergration, Asthma,
> Migrains, and who just had her eyes checked by a low vision
> specialiest and her vision is Nearsighted -3.25 in both eyes and
-400
> in the right and -700 in the left and now has bifocals
> http://www.geocities.com/mom2nfautism/NF_Autism.html.)