Dear mom I cant remember if you are in the UK but here in england
there are charities that can help. There is no shame in asking for
help. you have so much to deal with that you could reach overload, a
stress free mum means calm kids. If you are in the uk message me and
I'll give you the name of a few orgainizations who could help.


--- In neurofibromatosis2@yahoogroups.com, "bea" <mom2nfautism@c...>
wrote:
>
> I am just needing a ear to lean on right now. As I posted in early
> threads, my grandmother passed away in Oct. 2004 with Colon Cancer,
> My dad was in the hospital early Feb. 2005 with a blood clot, but
is
> now fine.,On Feb. 14, I had my car accident which destoryed my
> wheelchair, wheelchair lift, and left gas peddle. still have not
got
> anything replaced., One Feb. 15, my uncle died(he had NF1 also).
> Yesterday 3-9-05 my mom had a colonozopy (sorry on spelling) and
they
> removed 4 polops and found a tumor in the mouth of her colon that
> they say needs to be removed by an operation,( She has NF1 and we
do
> not know if it is a NF tumor or not) they did an EKG last night and
> they found something wrong with it, so enstead of the operation
today
> they did an angeogram to her heart and THANK GOD the doctor said
she
> has a perfect heart. He said "he wished he could change hearts with
> her, hers was in such good shape." He was the Cardologist. So now
we
> are wating to see when they are going to do the operation. It may
be
> tomarrow or it may be in two weeks. We don't know yet. I have no
car,
> I am having to depend on a friend to take the girls back and forth
to
> school, they are testing this week so I can't tell them about their
> grandma, I have to hide my emotions when they are around when all I
> want to do is scream and cry. I have to depend on people taking me
to
> the hospital to see her and bringing me home before the girls get
> home.
>
> Sorry this is so long, I'm just needing to talk to someone.
>
> I found out that my 8 year old is spending either part of her
recess
> or all of her recess most days on the line (time out for
misbehavior
> during school day) or (not doing work etc.) when her OT and PT
think
> she needs to run and play the whole time. I can't get to the
school,
> I can't see what is going on or talk with the teachers on either
> child. It is 4 weeks this week since my wreck and I feel I am going
> crazy. The head person at the other guys insurance told my dad that
> he thought this was taken care of and we said no it not, and he
said
> that he wanted us to call the place we have and no matter the cost
> they would replace it. that this was not just about replacing a car
> it was about my lifestyle and getting me back to the level of
freedom
> and independance I had before the wreck. So now we are still
wating.
> I hope my the end of March I have a car and lift and wheelchair
> again. I am going crazy. It will be a moth Monday the 14th.
>
> Thanks for leting me vent.
>
>
> __________________
> Bea (mom to daughter age 10 who has Neurofibromatosis, Autism,
ADHD,
> Sensory Intergration, Asthma)(mom to daughter age 8 who has
> Neurofibromatosis, Autism, ADHD, Sensory Intergration, Asthma,
> Migrains, and who just had her eyes checked by a low vision
> specialiest and her vision is Nearsighted -3.25 in both eyes and -
400
> in the right and -700 in the left and now has bifocals
> http://www.geocities.com/mom2nfautism/NF_Autism.html.)