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neurofibromatosis2 · A place for people with Nf to get to know others
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is there a chat room   Message List  
Reply | Forward Message #4943 of 6809 |
Re: [Neurofibromatosis] is there a chat room

hi my name is cathy cat23. go to www.nf.org
the best place to go and talk i am in tere all the time its a great place we are all like family in the room.
 
 
can't wate to see you
 
cat 23

Angel <ziggysmom1@...> wrote:

Hi all hoping to find a room to chat in My neurofibromatosis has
become a probem with pain and a cycst on my spine.besides having NF1
Im dealing with fibromyalgia.as many of us deal with mutliply
issues.Im suppose to see the gentics doctors at U ofM again this
month on the 10th if my health insurance goes through.thanks all.



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cathryncsck
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Forward 		Message #4943 of 6809 |
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Hi all hoping to find a room to chat in My neurofibromatosis has become a probem with pain and a cycst on my spine.besides having NF1 Im dealing with... 		Angel
ziggysmom1
Offline Send Email 		Feb 3, 2005
7:50 pm

hi my name is cathy cat23. go to www.nf.org the best place to go and talk i am in tere all the time its a great place we are all like family in the room. can't...
cathy
cathryncsck
Offline Send Email 		Feb 3, 2005
10:27 pm

Hello,I also have cycsts in spine.And it is from the NF. The last 4 days it has gotten way worse...
spyrogirlkim
Offline Send Email 		Feb 7, 2005
2:38 pm

hello how r u doing. good i hope like 2 be friends sorry that u r getten worse. spyrogirlkim <spyrogirlkim@...> wrote: Hello,I also have cycsts in...
JUAN RODRIGUEZ
jrodnfone
Offline Send Email 		Feb 7, 2005
4:29 pm

Hi Angel, I have cysts on the spine too, and I take Tramadol for the pain. It helps, but i'm still not totally pain free. But it makes a big difference, I...
littlenloud@...
littlenloud
Offline Send Email 		Feb 13, 2005
3:22 am
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