my name is nancy and ihave nf. I am 46 years ol ( well I will be
on Tuesday.} I am looking for a female to be e-mail pen pals
with, I dont have many friends. and I get lonely . any one out
there lonely and need a friend to. Thank you nancy
my name is nancy and ihave nf. I am 46 years ol ( well I will be on Tuesday.} I am looking for a female to be e-mail pen pals with, I dont have many...
Hi Lisa I'm Mel and also have NF1. where do you live? I'm in Bristol UK Mel Lisa Johnson <silly_mau@...> wrote: i have NF1 if anyone ever wants to meet...
... Hi Mel, I'm from Cambridge Ma... I live near Harvard.... My IM is silly_mau also at yahoo... please feel free to add to the IM... I would like to chat...
i just joined the group so im just gonna tell about myself, im 19 and was dinosged with NF1 when i was 4month old and at age 4 i become deadly ill docters...
welcome to the group, I know learning disablities all to well, I am 50 years old. I never had any children< I am married now for 6 years and a few months, my...
I am sorry to hear you are going through this. God Bless you. I know you will graduate and go on to be very succesful. Doctors can not predict what God has...
just keep up the work.... i was declared a hop less case and a person with a very dark future...some of the comments were really very insulting...but i still...
Welcome to the group. I saw your picture. You are very pretty. I hope you feel right at home here. Everyone is very sweet and supportive. Have a great...
welcome to the group this is a wonderful group im tessy single mom i have nf1 and also have 2 daughters 4 and 6 and some drs thing my j6 year old has it but...
today i need so much comprecion. very I am gotten depressed. sometimes I think that the death is one opicion good but master the life. because I must have this...
hi all, I am male, 30 and have nf1. I have number of bumps around 150.Mostly on chest and back .Some large (around 10-12 are of the size of pea) and mostly ...
sometimes having them remove for some reason can trigger more to grow, most Dr's won't remove them unless they cause pain or other life threating problems,...
Hi Jhon, Thanks a lot for the reply, this would really help me There is one the largest and that is on my left thigh, i some time have pain with this. That is...
Hi Zubair, Your right in saying if 1 of the parents has NF there is a 50% chance the child will be born with NF and if both have NF the child has a 75 %, if...
yes it is becasue i have nf1 and my first daughter shes 7 right now she has it too i did not know till she was born she was about 2 years old when i found out...
Hi John, Thanks for the reply again. You seem to know a lot about NF1. Well my main concern is that my children may not have it (a concern of all parents off ...
hi Zubair Yes I have heard of Pakistan, I have been to a lot of Countries as a Missionary with a Christian group, about 16 Countries I guess a few of them a...
Hi Jhon, Yes I do live and work in Pakistan (in capital city named Islamabad) to be sepecific. And you have visited 16 countries...wow... And you were in QA...
Hi Zubair, I wanted to reply to your post about removal of fibromas. I have posted several times about this. I have had great success with having these growths...
http://www.aurorahealthcare.org/yourhealth/healthgate/getcontent.asp?URLhealthgate=%2211650.html%22 hi Rita, this site says more tumors can grow, it does not...
This was on that website. What does it mean? "The Interinstitute Medical Genetics Research Program at the NIH Clinical Center conducts NF2 family history...
Ever noticed that medical research announcements seldom come to fruition? Technobabble about so-called breakthroughs are announced daily yet our population...
So you feel the electron scope is wrong saying the DNA chromosome #17 is defective ? how long do you feel NF has ben around and when the first DR to write...
Its a moot point. Nothing beneficial ever comes from this kind of research. Dr. Samuels was a genius. His ticket was pulled before he could treat a patient...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
Offline 
Send Email
