------------------------ Yahoo! Groups Sponsor --------------------~-->
Yahoo! Domains - Claim yours for only $14.70
http://us.click.yahoo.com/Z1wmxD/DREIAA/yQLSAA/IjRrlB/TM
--------------------------------------------------------------------~->

There are 2 messages in this issue.

Topics in this digest:

1. Re: Digest Number 345
From: cheryal holden
2. Re: Digest Number 345
From: Roger Banks


________________________________________________________________________
________________________________________________________________________

Message: 1
Date: Sat, 12 Jun 2004 10:04:23 -0700 (PDT)
From: cheryal holden
Subject: Re: Digest Number 345

Thank you Nora Mae, I am trying to get her into this group, I really think it would do her some good. Her self esteem is just so low. I honestly can't help her, I can not relate, I do not have NF. Currently I have two ladies in my house, my mother in law and sister in law, they both have dementia, and my time is really ful with them. I feel bad for my sister because I,m not able to spend the time with her like she probably needs, so just as soon as I can convince her, she may be emailing you. The poor girl has lots of issues. I just don't have the emotional stregnth to deal with with all of this right now. I just joined a support group for the dementia issues, and that is helping me. Thanks

Nora Mae wrote:
I'm sorry to be so blunt, but your mother's outlook is very damaging and much of your sister's low self-esteeem can be blamed on your mother. You really need your sister to talk to other people with NF who feel good about themselves and are positive about life. Your mother's bitterness has hurt you because she was angry at you for having it, but it hurt your sister because if your mother saw herself as a freak, then your sister would only assume that that's how her mother (and everyone else) saw her.

I'm so sorry you had to grow up with a mother who treated you like that. I pray every day that my kids will NOT get it; that they will not have go thru this. Not becasue I'd love them less or because I would see them any differently -- but because it is painful (emotionally), and it is difficult. But what makes a person beautiful is what is on the inside. You have that inner beauty, and that is what is going to make a relationship last -- not how long one stays beautiful. Besides... a relationship based soley on physical attraction is very shallow.

I hope your sister can heal, and in time, I hope she will begin to love herself and enjoy life. I'd be willing to communicate with her if she would like. #

Take care,

Nora



There are 2 messages in this issue.

Topics in this digest:

1. sister
From: "cheryalh"
2. Re: sister
From: carolinacpnter@...


________________________________________________________________________
________________________________________________________________________

Message: 1
Date: Tue, 08 Jun 2004 18:40:09 -0000
From: "cheryalh"
Subject: sister

I have a younger sister that has NF, actually three younger sisters.
Our mother also has NF. I never did develope NF and neither has my
daughter. Our mother had a pour outlook regarding the NF, people
stared and she was very self concious. The reason I am writing, my
sister is going thru some emotionally rough times right now, her self
esteem is so low that she found herself looking very closly at her
profile and now regards herself as a monster. To be very honest, I
can not relate to what she feels like and I don't know what to tell
her. If I can get her to agree to it, do you all think that maybe
you guys can help her thru this. She does have an email address, but
I want to get her permission first before I send it out. She also
has other issues that all seem to tie into having NF. Our mother
never dealt with it very well, so I'm sure that has alot to do with
it. Our mother also had other mental problems, I remember her
getting so mad at me because I did not have NF, she would tell me
that when I turned 21 I would wake up one morning with all these
bumps all over and if I was married my husband would leave me and my
children would leave as well. Needless to say, the relationship with
the family is not a very good one. I do care very much for my
sister, but I also know that she will not do the searching for help.
Please let me know what you think.



________________________________________________________________________
________________________________________________________________________

Message: 2
Date: Tue, 8 Jun 2004 18:58:44 EDT
From: carolinacpnter@...
Subject: Re: sister

tell her to e mail me i wont look down on her i have bumps to
feel same as she does


[This message contained attachments]



________________________________________________________________________
________________________________________________________________________



------------------------------------------------------------------------
Yahoo! Groups Links




------------------------------------------------------------------------




"Although the world is full of suffering, it is also full of the overcoming of it."
- Helen Keller

---------------------------------
Do you Yahoo!?
Friends. Fun. Try the all-new Yahoo! Messenger
Yahoo! Groups SponsorADVERTISEMENT


---------------------------------
Yahoo! Groups Links

To visit your group on the web, go to:
http://groups.yahoo.com/group/neurofibromatosis2/

To unsubscribe from this group, send an email to:
neurofibromatosis2-unsubscribe@yahoogroups.com

Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.




[This message contained attachments]



________________________________________________________________________
________________________________________________________________________

Message: 2
Date: Sat, 12 Jun 2004 18:31:43 -0700 (PDT)
From: Roger Banks
Subject: Re: Digest Number 345

what should you do if your father has the symptoms of
nf really bad, many tumors including a couple of large
ones and you are afraid you will end up like him? i
only have a few tumors that are visible.




__________________________________
Do you Yahoo!?
Friends. Fun. Try the all-new Yahoo! Messenger.
http://messenger.yahoo.com/


________________________________________________________________________
________________________________________________________________________



------------------------------------------------------------------------
Yahoo! Groups Links

<*> To visit your group on the web, go to:
http://groups.yahoo.com/group/neurofibromatosis2/

<*> To unsubscribe from this group, send an email to:
neurofibromatosis2-unsubscribe@yahoogroups.com

<*> Your use of Yahoo! Groups is subject to:
http://docs.yahoo.com/info/terms/

------------------------------------------------------------------------