Having problems with message search?
Hi,
I understand that you are probably scared. I have Nf1 also. Have you been to the Nf.org site at all ? There you will find a bulletin board and alot of other people and parents of children with NF. There are a ton of people that can help answer questions and give you support. Try not to be too scared. I know it can be overwhelming at first.
mr03ladybug <mr03ladybug@...> wrote:
mr03ladybug <mr03ladybug@...> wrote:
Hi. My daughter will soon be 14 months old. Since she was 3 days
old, she has been developing cafe ole spots. She now has approx 18
of them. We have since been to see a Neurologist at Tx. Children's
Hospital, and has had her first MRI. From what our Dr. said, she has
the "trace signs of NF" that they were looking for. Therefore, we
have been refered to the NF Clinic & are now scheduled to start our
visits at the Genetics Department. Is there anyone out there that
can tell me what your experience is with a child so young, and what
this all means? Even if you are the person that was once the child
with it. As you can imagine, I am scared stiff.
Thank you for your responses, in advance.
Yahoo! Groups Links
<*> To visit your group on the web, go to:
http://groups.yahoo.com/group/neurofibromatosis2/
<*> To unsubscribe from this group, send an email to:
neurofibromatosis2-unsubscribe@yahoogroups.com
<*> Your use of Yahoo! Groups is subject to:
http://docs.yahoo.com/info/terms/
Offline 
Send Email