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neurofibromatosis2 · A place for people with Nf to get to know others
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Reply | Forward Message #4636 of 6809 |
If they already know that she has NF how do they know it is NF2?
Usually nf2 doesnt show up until much later in life(late teens early
20's). NF1 is usually the one that shows up in childhood. Are the
doctors sure of her diagnosis?? Check out the National NF website,
Its very helpfull. I believe the address is: www.nf.org

Hope this helps some.



K.M.




Sat Mar 20, 2004 4:38 am

blueberry_gi...
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Message #4636 of 6809 |
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If they already know that she has NF how do they know it is NF2? Usually nf2 doesnt show up until much later in life(late teens early 20's). NF1 is usually the...
blueberry_girl14224
blueberry_gi...
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Mar 20, 2004
4:38 am

... early ... I am sorry I posted this wrong. Please excuse me I am a moron, Its late. lol...
blueberry_girl14224
blueberry_gi...
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Mar 20, 2004
4:40 am

Here is a site that may be helpful. It explains NF1 and NF2. The way I remember what chromosone is responsible for NF2 is 22, as it is the more severe of the...
countrygal4043
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Mar 20, 2004
1:45 pm

... early ... Her 22 chromsone is mutated she also has lost 70% of her vision, and has had surgery to remove blastomia cancer from spine and her stomache and...
taz27girl
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Mar 20, 2004
8:08 pm
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