My son has NF1 He has cafe-au lait spots all over his body one is
large enough to cover her knee cap. He waS diagnosed with it last
yr. They found a less than 2 centimeter tumor on his brain and the
last MRI they took wich was three weeks ago they found he has a hole
in his spine anyone else have these problems His back hurts him like
crazy at times
any help would be appreciated
Janice
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