Search the web
Sign In
New User? Sign Up
neurofibromatosis2 · A place for people with Nf to get to know others
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Real people. Real stories. See how Yahoo! Groups impacts members worldwide.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
to approach or not?   Message List  
Reply | Forward Message #4243 of 6809 |
Hi, I have a question that I would love to get some feedback on. I
live in a fairly small town (about 15,000 people). My daughter who
is nine has NF1. sometimes when I am at the grocery store, I see a
woman doing her shopping who looks to me like she might have NF, she
has many many bumps on her face. I have always wanted to approach
her and ask her if she has NF but at the same time I don't want to
offend her, it sort of goes against what I teach my daughter which is
that what is important about a person is what is on the
inside.....and I feel like this woman, no matter what it is that
she "has", she's probably ultra conscious of it and doesn't want
people to ask her.
Can anyone tell me if you have Nf, do you prefer being asked about it
because it gives you a chance to educate people or do you prefer if
people don't even acknowledge there is anything different about you?

I should add that my daughter is just becoming aware of herself in
that preteen way and starting to look at her spots...she has probably
40-60 spots.
thanks




Thu Apr 3, 2003 3:47 am

humboldtgirls
Offline Offline
Send Email Send Email

Forward
Message #4243 of 6809 |
Expand Messages Author Sort by Date

Hi, I have a question that I would love to get some feedback on. I live in a fairly small town (about 15,000 people). My daughter who is nine has NF1....
humboldtgirls
Offline Send Email
Apr 3, 2003
3:47 am

That is a very good question and I really dont know what to say because I am kinda in the same boat too. I have NF 1 and have never actually seen anyone/ ment...
Karate Dove
karatedove
Online Now Send Email
Apr 3, 2003
2:38 pm

I would say ask. I have first hand knowledge that you might find it may bring relief to the person in question. I would much prefer somone come up to me and...
Juliana
jules98422
Offline Send Email
Apr 3, 2003
8:57 pm
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help