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Reply | Forward Message #4200 of 6809 |
Re: [Neurofibromatosis] Symptoms


I HAVE GOTTEN FAR WORSE AS I GOT OLDER. MY FACE IS BREAKING OUT I AM VERY UP
SET ABOUT THIS. SOME TIME I DO PLAN TO HAVE THEM REMOVED WHEN I FIND A DOCTOR
THAT THAT DOES NOT TAKE ME FOR A RIDE. MY INCOME IS LIMILMED/
Karate Dove <KarateDove@...> wrote:About the bumps I heard that Vitamin E
helps slow them
down, and well alittle Vitamin E every day cant hurt
you can it? I know that its expensive I heard from a
co-worker (dosent have NF) says when she takes Vitamin
E she bruises easy. Is that common from taking this
Vitamin and does anyone know if this is true( slowing
down the bumps) I really dont mind them too much I
have 2 really small ones on my face that upset me for
awhile but live and move on I have one on my head,
each one of my shoulders a weird one on my arm that
looks like a bug bite with hair and a large one on my
leg. I am in the child bearing dtages of life. Do you
get more bumps when your are 20-30 and pregenet as
apposed to not being pregnet? thanks for your help
Love Sherri

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[Non-text portions of this message have been removed]
Tue Feb 4, 2003 9:02 pm

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cam11956
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Forward 		Message #4200 of 6809 |
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Hello, Everyone I have been under quite a lot of stress recently and both my CALs and the lumps and bumps seem to increasing. Does anyone know if there is a... 		wendysguk <wsg@...>
wendysguk
Offline Send Email 		Feb 2, 2003
8:18 pm

Wendy, It may or may not be stress related. In the natural progression of NF you eill get more and more Fibromas as you get older. I have many more now than...
ca-unicorn
Offline 		Feb 2, 2003
8:49 pm

HI WENDY FUNNY YOU SHOULD SAY THAT BECAUSE MY BUMPS ARE ALSO COMING OUT MORE I THINK STRESS HAS ALOT TO DO WITH IT UNSURE IF THE DR'S WOULD AGREE WITH ME....
CAMERON SHEELEIGH
cam11956
Offline Send Email 		Feb 2, 2003
9:48 pm

I would be inrerested in more feedback on this subject from others. I also am aware that hormonal changes can cause growth spurts as it did me during my...
sugarrita1
Offline 		Feb 2, 2003
10:16 pm

Isugarrita1 <no_reply@yahoogroups.com> wrote: I HAVE HAD SOME REMOVE ONLY TO FIND THEY COME BACK. THAT IS WHAT I GET THE MOST UP SET ABOUT I HAVE NOT HAD THEM...
CAMERON SHEELEIGH
cam11956
Offline Send Email 		Feb 2, 2003
10:35 pm

HIi there, Since your NF was a spontaneous mutation your children have a 50% chance of getting it. If they are lucky and do not get it ........they will not...
Genevieve Seymour
cleo5899
Offline Send Email 		Feb 5, 2003
3:17 pm

Wendy, I too have noticed more bumps and such when I am really stressed out. Also when I have a glass of wine it makes my bumps seem more evident. (does this...
Juliana
jules98422
Offline Send Email 		Feb 2, 2003
11:49 pm

About the bumps I heard that Vitamin E helps slow them down, and well alittle Vitamin E every day cant hurt you can it? I know that its expensive I heard from...
Karate Dove
karatedove
Online Now Send Email 		Feb 3, 2003
2:20 pm

Sherri, I have also heard about vitamin E slowing growth of tumors but do not know of anyone who could testify to that. Myself, during both my pregnancies,...
sugarrita1
Offline 		Feb 3, 2003
5:54 pm

I don't know about V-E slowing the growth of NF down any I've been taking V-E every day for about 4 years, cant really tell you if it has helped or not. I've...
sweetnuttin00
Offline 		Feb 3, 2003
6:40 pm

Hi Rita I have been led to believe that you can't be a silent "carrier" of NF. Drs have told me that you must have some physical sign of the disorder i.e. CAL...
kazza34au
Offline 		Feb 4, 2003
10:51 pm

You are correct Karen, You cannot be a "carrier" of NF. Since it is a dominant gene if you have the gene you will have some sign of it....however mild or ...
Genevieve Seymour <cl...
cleo5899
Offline Send Email 		Feb 4, 2003
11:06 pm

I have NF and nither one of my parent have it. Mine was do to a spontanious mutation too. Most of the cafe spots are usually under the arm pits and around the...
Karate Dove
karatedove
Online Now Send Email 		Feb 5, 2003
1:30 pm

Hi again, My son is aged 9 & has the CAL spots mainly on his left side of his body and a large number on his left thigh. He also has lisch nodules in both...
kazza34au
Offline 		Feb 6, 2003
9:55 am

I HAVE GOTTEN FAR WORSE AS I GOT OLDER. MY FACE IS BREAKING OUT I AM VERY UP SET ABOUT THIS. SOME TIME I DO PLAN TO HAVE THEM REMOVED WHEN I FIND A DOCTOR THAT...
CAMERON SHEELEIGH
cam11956
Offline Send Email 		Feb 4, 2003
9:02 pm

Please bear with me as I am totally sick right now.. When I am stressed, ican feel the bumps. especillly on my back. It feeels as if someone were pinching me...
cardshark_kev
Offline 		Feb 4, 2003
7:17 am

Hi All What I found when I was a little bit stressed, under pressure and / or worried, was that the lump above my left eye (this is where my nf has affected me...
sparkiesean
Offline 		Feb 4, 2003
8:52 am

Dear everybody Thanks for all your helpful comments to my query. I will try the Vitamin E. I certainly agree there is some sort of hormonal connection. I ...
wendysguk <wsg@...>
wendysguk
Offline Send Email 		Feb 3, 2003
8:14 pm
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