I have also heard about vitamin E slowing growth of tumors but do not
know of anyone who could testify to that. Myself, during both my
pregnancies, noticed more growth of the bumps. I am now in my 30's
and do have more than I did ten years ago.....and have gotten more
now that my kids are older. But, it hasn't been to the point where
it seems I get new bumps all the time. I have had some on my face
removed....one left a scar like a crater that i am not happy about.
The face is more noticeable in the sunlight when it seems I can see
bumps under the skin....anyone else? Funny how this disorder differs
with all. Most of my bumps are tiny or pea size.....some areas are
numerous. I have a couple of what I believe are plexiform fibromas
but they are more under the skin....but large and I have also had one
of those removed. Just consult a genetic doctor before you decide to
have children. It very likely could affect you and chances are about
50/50 of your child being born with NF. Neither of mine have it but
that is not to say that they are carriers of NF and could pass it
on. Hope this helps!! Rita
Hello, Everyone I have been under quite a lot of stress recently and both my CALs and the lumps and bumps seem to increasing. Does anyone know if there is a...
Wendy, It may or may not be stress related. In the natural progression of NF you eill get more and more Fibromas as you get older. I have many more now than...
HI WENDY FUNNY YOU SHOULD SAY THAT BECAUSE MY BUMPS ARE ALSO COMING OUT MORE I THINK STRESS HAS ALOT TO DO WITH IT UNSURE IF THE DR'S WOULD AGREE WITH ME....
I would be inrerested in more feedback on this subject from others. I also am aware that hormonal changes can cause growth spurts as it did me during my...
Isugarrita1 <no_reply@yahoogroups.com> wrote: I HAVE HAD SOME REMOVE ONLY TO FIND THEY COME BACK. THAT IS WHAT I GET THE MOST UP SET ABOUT I HAVE NOT HAD THEM...
HIi there, Since your NF was a spontaneous mutation your children have a 50% chance of getting it. If they are lucky and do not get it ........they will not...
Wendy, I too have noticed more bumps and such when I am really stressed out. Also when I have a glass of wine it makes my bumps seem more evident. (does this...
About the bumps I heard that Vitamin E helps slow them down, and well alittle Vitamin E every day cant hurt you can it? I know that its expensive I heard from...
Sherri, I have also heard about vitamin E slowing growth of tumors but do not know of anyone who could testify to that. Myself, during both my pregnancies,...
I don't know about V-E slowing the growth of NF down any I've been taking V-E every day for about 4 years, cant really tell you if it has helped or not. I've...
Hi Rita I have been led to believe that you can't be a silent "carrier" of NF. Drs have told me that you must have some physical sign of the disorder i.e. CAL...
You are correct Karen, You cannot be a "carrier" of NF. Since it is a dominant gene if you have the gene you will have some sign of it....however mild or ...
I have NF and nither one of my parent have it. Mine was do to a spontanious mutation too. Most of the cafe spots are usually under the arm pits and around the...
Hi again, My son is aged 9 & has the CAL spots mainly on his left side of his body and a large number on his left thigh. He also has lisch nodules in both...
I HAVE GOTTEN FAR WORSE AS I GOT OLDER. MY FACE IS BREAKING OUT I AM VERY UP SET ABOUT THIS. SOME TIME I DO PLAN TO HAVE THEM REMOVED WHEN I FIND A DOCTOR THAT...
Please bear with me as I am totally sick right now.. When I am stressed, ican feel the bumps. especillly on my back. It feeels as if someone were pinching me...
Hi All What I found when I was a little bit stressed, under pressure and / or worried, was that the lump above my left eye (this is where my nf has affected me...
Dear everybody Thanks for all your helpful comments to my query. I will try the Vitamin E. I certainly agree there is some sort of hormonal connection. I ...